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Maria Lopez hasn't added a story.
¡Hola!
Soy Miguel Arturo, tengo 8 meses de edad y hace un mes me hicieron un examen genético y descubrieron que mi ADN está incompleto, me falta el gen LMNA.
Las enfermedades que provoca esta deleción se engloban en las
laminopatias, que son extremadamente raras y difíciles de
tratar.
Yo tengo “Emery-Dreifuss tipo 2”, no puedo levantar mi
cabeza, ni sentarme solo sin que mi cuerpo se vaya de lado, no puedo
rodarme y solo puedo comer papillas.
Los médicos dicen que mi
corazón puede crecer hasta el punto de no poder funcionar, y que poco
a poco perderé la fuerza hasta no poder mover nada de mi, pero con tu
ayuda podremos conseguir un tratamiento para detener mi enfermedad.
Gracias por leerme y ayudarme, tu puedes hacer la diferencia.
con amor, Miguel Arturo ♥️
Hi!
My name is Miguel Arturo, I am 8 months old. A month ago I had a
genetic test and they discovered that my DNA is incomplete, I am
missing the LMNA gene.
The diseases that are caused by this
missing gene are included on the laminopathies, which are extremely
rare and difficult to treat.
I was diagnosed with
"Emery-Dreifuss type 2", I can't lift my head, sit alone
without my body going to one side, I can't roll over and I can only
eat porridge food.
The doctors say that my heart can grow to the
point of not being able to function, and that little by little I will
lose strength until I cannot move my body parts. But with your help we
can get a treatment to stop my illness.
Thanks for reading and helping me, you can make a difference.
with love, Miguel Arturo ❤️
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