Anita Shaffer in 1977 at the age of 6 was diagnosed with Hereditary Angioedema Type 1. For 35 years I've tried new drug therapies (with terrible side effects) and getting life saving intervention at my local emergency room as many as 2 times per month.
Carlie created the Wear Jeans for Rare Genes to bring awareness to HAE. Wear jeans on May 12, 2016 to show support for Carlie and her family and to bring awareness to HAE.
The HAEA has worked for 15 years to support the development of new HAE drugs, therapies, and research. We are humbled and inspired by the community we serve and the bravery and persistence exhibited by our patients. To the Finish line, Ava!
$15,471
raised of $10k goal Finished April 18, 2016
The HAEA has worked for 15 years to support the development of new HAE drugs, therapies, and research. We are humbled and inspired by the community we serve and the bravery and persistence exhibited by our patients. To the Finish line, Katie and Tim!
Michael Ardito is a 15 year old high school student on a mission. For the last 5 years his goal has been to raise awareness and money for research to find a cure for Hereditary Angioedema. Both his step dad, John Harrington and his sister Kati Harrington
$6,640
raised of $5k goal Finished November 6, 2015
Carlie created the Wear Jeans for Rare Genes to bring awareness to HAE. Wear jeans on May 8, 2015 to show support for Carlie and her family and to bring awareness to HAE.
Please join us May 16, 2015 from 12pm-6pm for the 4th Annual Lyndon Brooke Stidham Memorial Walk for HAE at Heritage Park in Cullman AL This is a walk in memory of Lyndon who lost her battle with HAE at age 12 on September 28, 2004. Please ...
$1,810
raised of $1k goal Finished August 19, 2015
Hereditary Angioedema (HAE) is a rare, debilitating and potentially fatal genetic disease resulting from a deficiency of a key plasma protein. Patients suffer from unpredictable attacks of swelling that involves the hands, feet, abdomen, face, and airway.
Support the HAEA community as physician/scientists Dr. Bruce Zuraw and Dr. Sandra Christiansen and HAEA financial advisor Caesar Sweitzer make the arduous climb up Mt. Kilimanjaro to help provide HAE patients with access to optimal care.
$53,825
raised of $50k goal Finished October 8, 2014
