Join your HAEA Patient Services Team Members as we particpate in the various events scheduled for May 2015

Our Story

The US HAEA Patient Services Team is dedicated to providing a wide range of services to HAE patients and their families. Patient Services Team Members are either patients themselves or caregivers for HAE patients. Our Team Members cover six geographical regions and provide assistance that includes physician referrals, disease education and individualized patient support. We know and understand HAE and what it means to live with HAE. Our Team has been able to help countless fellow HAE patients though out the years and continues to do so everyday

What is HAE?

Hereditary Angioedema (HAE) is a rare, debilitating and potentially fatal genetic disease resulting from a deficiency of a key plasma protein. Patients suffer from unpredictable attacks of swelling that involves the hands, feet, abdomen, face, and airway. Abdominal swelling involves excruciating pain and vomiting that can last up to 72 hours. Airway attacks constitute a major medical emergency that can lead to death by suffocation. Despite the availability of new medicines and progress made in HAE advocacy and education, preventable HAE-related deaths continue to occur, and many patients still suffer from disabling attacks. To find out more, check out www.haea.org