- Pin it
- SubscribeUnsubscribe
- Embed
Mucolipidosis Type IV Foundation hasn't added a story.
Hello Everyone,
Thank you for visiting my bar mitzvah fundraising website. I
decided that the most special way for me to celebrate my upcoming
bar mitzvah is to share it with my friend, Shaindy Gold. Shaindy’s
family and my family have been friends for a long time and Shaindy
is a very important person in my life. In many ways, we are the
same. We both love to eat, laugh and play with our siblings.
However, since Shaindy has Mucolipidosis Type IV (ML4), she has a
problem with the lysosome of her cells. This means she can not talk,
walk or understand things easily and she is losing her eyesight.
Doctors say she has a limited lifespan. I think Shaindy deserves to
be a healthy 8 year old girl and all children born deserve to be
healthy. I want to try and help fund research in labs across the
world that could help treat and one day cure Shaindy and the other
children with this disease.
I love spending time with Shaindy and it makes so happy when she is smiling and laughing. Helping me find a cure for ML4 is the best bar mitzvah gift you could ever give me. Instead of giving me a gift, please consider donating to the ML4 Foundation. All the money that is donated will go directly to the ML4 Foundation to make sure that the exciting research that is happening will continue.
Thank you for helping me and my friends with ML4!
Sincerely,
Ephraim Freundlich
Highlights
See all activity284Updates
Activity
Delete media item?
Delete this item from the media gallery? It will also be deleted from any related story update.
Set as ?
The campaign video will appear in social media and email.
The campaign cover picture will appear in social media and email.
The will appear at the top of your campaign page and in social media and email.
Reset ?
It will be removed from the top of your campaign and won't be used as default in social media and email. The will remain in the media gallery.
Embed
Share a link
Delete update
Delete this story update?
Any pictures or videos will remain in the campaign's media gallery.
Report campaign
Report submitted
Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.
Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Tell us about the problem. Please fill in both fields below.
Record a video
Upload a video
Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.
Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.
- Most effective video length: about a minute.
- Maximum length: 5 min.
- You can preview or redo your video before you post it.
Heads up! The existing video will be replaced.
Email your friends
Join our team
Endorsement banner
- Endorsement banners have been proven to lead to more contributions.
- If you change your mind, you can always adjust your endorsement banner settings from the Share page.
Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.
Say it in video
Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.
Add a personal goal
Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.
We have a video!
Video thumbnail
We'd love to show you our campaign video. Want to take a look?
, you're already on the team.