Please donate and support Team Katie & Tim as they cross the finish-line to make momentous strides for kids with HAE and help raise awareness at the premier HAE IN-MOTION 5K run on October 11th. www.5k.haea.org
Katie's Story....
Life with HAE often feels like a race. All at once, it can be exhausting, exhilarating, painful and rewarding. For so long, I thought being diagnosed marked the end - it was the finish line I fought so desperately to reach. But in reality, it was only the beginning. This journey is a marathon - towards better treatments, awareness and a cure.
I feel so unbelievably lucky and grateful to be participating in the HAE 5K on October 11th! I cannot wait to see many extraordinary people who have gifted me with wonderful memories of support, hilarity and hope. I am also thankful to be running with my number one teammate and partner in crime. He helps me be my strongest, authentic, best (and hopefully next weekend, athletic) self! Welcome to the swell family, Tim!
Please support us, and all the fabulous participants of the HAE 5K! Even the smallest donation can make a world of difference!
Thank you all so very much!
Where will the money go?
Together we can Elevate Aspirations for Life with HAE! In honor of 2015 Year of the Youth, every dollar contributed will be placed in two special programs to help improve the lives of our HAE youth and their loved ones...
1) The HAEA Scholarship program to help our patients with HAE who seek to enrich their lives through academic achievement (http://www.haeascholarship.org/).
2) The HAEA Brady club, a special club designed for children with HAE and their siblings to learn, manage, and cope with this chronic illness.
What is HAE?
Hereditary Angioedema (HAE) is a rare, debilitating and potentially fatal genetic disease resulting from a deficiency of a key plasma protein. Patients suffer from unpredictable attacks of swelling that involves the hands, feet, abdomen, face, and airway. Abdominal swelling involves excruciating pain and vomiting that can last up to 72 hours. Airway attacks constitute a major medical emergency that can lead to death by suffocation. Despite the availability of new medicines and progress made in HAE advocacy and education, preventable HAE-related deaths continue to occur, and many patients still suffer from disabling attacks. To find out more, check out HAEA.org
