Walk of HOPE! Tia Staley is a ten year old girl diagnosed with CDKL5 Disorder, it is an x-linked genetic disorder. Most individuals suffer from early-onset difficult to control seizures. Many also have gait abnormalities and are unable to walk.

Walk of Hope! Most individuals with CDKL5 disorder have gait abnormalities and are unable to walk. Tia will walk 1K annually with family, friends and generous donors like you to raise funds for CDKL5 research.

Tia Staley is a 9 year old girl diagnosed with a rare x-linked genetic disorder called CDKL5 disorder.  One of the first symptom is early onset difficult to control seizures that begins in the first few months of life.