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Bec Marsh

Individual
1 campaign 1 contribution made Member since July 2018

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Unpublished
One Small Step - Jahleel's Journey to Gene Replacement Therapy Reached a milestone
Milestone May 14, 2020
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Unpublished
One Small Step - Jahleel's Journey to Gene Replacement Therapy Reached a milestone
Milestone Feb 27, 2020
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One Small Step - Jahleel's Journey to Gene Replacement Therapy Reached a milestone
Milestone Dec 21, 2019
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Unpublished
Bec Marsh Posted an update on One Small Step - Jahleel's Journey to Gene Replacement Therapy
Story update Aug 29, 2019

This is one of the many Occular Gyric Crisis Attacks that Jahleel's suffers from daily...sometimes twice a day. To get an idea of how painful they can be, start by rolling both of your eyes to the top of your sockets as hard as you can and hold them there for a minute. Then straighten your legs as tight as they can go.....twist your arms behind your back and totally arch your back into a semi circle. It's not pleasant....... Now imagine that for up to 9 hours https://www.facebook.com/JJsjourneytoGT/videos/2908496565845387/

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One Small Step - Jahleel's Journey to Gene Replacement Therapy Reached a milestone
Milestone Jun 21, 2019
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Lina Contributed $60 to One Small Step - Jahleel's Journey to Gene Replacement Therapy
Contribution Sep 7, 2018
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Unpublished
One Small Step - Jahleel's Journey to Gene Replacement Therapy Reached a milestone
Milestone Aug 23, 2018
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Unpublished
One Small Step - Jahleel's Journey to Gene Replacement Therapy Reached a milestone
Milestone Aug 21, 2018
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Bec's campaigns

One Small Step - Jahleel's Journey to Gene Replacement Therapy

Jahleel is a beautiful boy suffering from an ultra rare brain disease called AADCd. I am trying to raise the money needed to get to either Poland or Japan for a Life Saving/Changing Operation. Please help me give my boy the chance to take One Small Step!

$12,140 raised of $100k goal
6 Years running
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