Raising Awareness of Leukodystrophies
$150 raised
6% of $2.5k goal
5 contributors
6 Years running
The Stennis Foundation is a nonprofit organization committed to raising awareness of Leukodystrophies & funds for Leukodystrophies research. The Leukodystrophies are a group of rare brain-degenerative disorders that strip away myelin, the insulated ...
The Stennis Foundation is a nonprofit organization committed to raising awareness of Leukodystrophies & funds for Leukodystrophies research. The Leukodystrophies are a group of rare brain-degenerative disorders that strip away myelin, the insulated covering of the nerves in the central & peripheral nervous systems. Prognoses for these disorders are always poor, & treatment is limited to symptom management & bone marrow transplantation, which helps to delay disease progression, and in some cases, stop progression altogether. Besides supporting research, The Stennis Foundation is an advocate for blood and marrow donation, sponsoring drives and working with other organizations to recruit individuals to the “Be The Match” National Bone Marrow Registry. For more information regarding The Stennis Foundation, log on to www.stennisfoundation.org. For more information regarding “Be The Match,” log on to www.marrow.org.
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