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HavenHood
Where Patients and Caregivers Find Community
HavenHood is a community platform that connects patients and caregivers with people nearby who understand the challenges of a medical journey. Through shared experiences, trusted resources, and real world connection, HavenHood helps people find meaningful support close to home.
Our mission is simple. To ensure no patient or caregiver has to navigate a medical journey alone.
The Need
More than 63 million Americans serve as family caregivers , and over half of U. S. adults live with at least one chronic disease. As chronic conditions continue to rise globally, millions of families are navigating complex medical journeys that often feel isolating and unsupported.
Despite this enormous need, there is still no dedicated platform designed to help patients and caregivers easily find local support communities.
For many families, isolation becomes one of the hardest parts of the journey.
The Moment That Changes Everything
Imagine leaving the hospital after a life changing diagnosis.
You are handed discharge papers, new medical terminology, and a list of instructions you are not sure you fully understand. The doctor was kind but rushed. The real life questions begin the moment the elevator doors close.
How do I keep my child safe at school or at sports?
What does
this mean for my future?
Who can I talk to who truly understands?
Google is overwhelming. Friends try to help but cannot relate. And suddenly, one of the hardest journeys of your life feels incredibly lonely.
The Gap
Today’s online support platforms are often noisy, impersonal, and rarely local.
What’s missing is a safe, localized space where patients and caregivers can build meaningful relationships, share experiences, and find support both online and in real life.
That’s what HavenHood is building.
Our Story
HavenHood was founded by Sylvia Huml and Diona Gouker, two mothers navigating their children’s diagnoses of Type 1 Diabetes and Celiac Disease.
During this journey, they discovered that connection with other parents who truly understood made all the difference. What began as late night conversations quickly grew into a close knit circle of support.
As their community expanded, they realized something important: families everywhere were searching for this same connection, but there was no easy way to find it locally.
So they built HavenHood.
The Solution
HavenHood connects patients, caregivers, and allies through localized communities designed for real support.
The platform allows members to:
•
Find
local
support
from
others
navigating
similar
diagnoses
•
Share
updates
and
ask
questions
in
a
safe
community
environment
•
Attend
local
meetups
and
events
that
bring
connection
into
real
life
•
Access
community
curated
resources
shared
by
people
who
understand
Whether you are a parent caring for a child with Type 1 diabetes or an adult navigating your own diagnosis, HavenHood creates a place where support feels personal, trusted, and close to home.
Our Vision
We believe the most powerful support is often the support closest to home .
Someone who can meet for coffee. Sit beside you at the park. Or simply understand without explanation.
HavenHood is building a nationwide network of local circles of care so no one has to navigate their journey alone.
A Note on This Campaign
HavenHood is currently being supported through a donation-based fundraising campaign.
Contributions to this campaign are not investments and do not provide equity. Instead, they are a way to support the early development of HavenHood and help bring this community to life for families who need it.
Every contribution directly supports building a platform designed to make connection and support more accessible for patients and caregivers.
How Your Support Helps
We are currently raising funds to accelerate HavenHood’s development and expand its reach.
As a community-supported initiative, your contribution helps us:
• Continue refining the HavenHood platform
• Expand
accessibility through a companion website
• Invest in marketing
to reach new communities and medical conditions
• Grow a safe and
trusted national community
Join Us
Your support helps build more than an app.
It builds connection, understanding, and community for patients and caregivers navigating some of life’s most difficult challenges.
By contributing, you are helping bring HavenHood to life. No one should have to navigate a medical journey alone.
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