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Please be part of creating a 1.5 mile Fishtail "Love Chain for Life", with contributions from all over the world, for a GREAT CAUSE!
Our goal is 1.5 miles of connected Fishtails, which is 7,920 feet. That’s LONG…but WE WILL DO IT! Please be part of this effort to help SavingEliza and to stop Sanfilippo Syndrome. Eliza O'Neill (age 4) was diagnosed with Sanfilippo Syndrome. Sanfilippo Syndrome is a deadly degenerative childhood disease. Researchers have found a treatment to STOP this disease this year, pending urgent funding. This funding goes to stopping this disease for all children.
Please send us a 12 inch (1 foot) (30.5 cm) fishtail loom band to be included in the Love Chain for Life. We are asking each 1 foot entry come with a $10 donation and PLEASE donate on this Funrazr site here. (**To pay with regular credit card, at checkout hit 'Pay with Paypal', then on next screen 'Buy as Guest' button at bottom**)
Your individually made Fishtails to be included in this "Love Chain for Life" can be sent via regular mail to: Cure SFF, Attn: Fishtail Love Chain, PO Box 6901, Columbia, SC 29260
We will tag each piece with the name and location of the entry, so send with the information you would like listed (if you don’t want last name, just let us know on your entry) You can of course remain anonomous, but we think it will be great to have a this huge Loom Band put together with LOVE from children and families all over the world. You can also dedicate your pieces in honor of special people in your lives as well.
If you would like to submit more than one foot, thats GREAT!! We do ask a donation of $10 for each foot (Example, if you send in 5 feet, $50 donation here on the site please) Feel free to do fundraisers around friends/family sponsoring your pieces or entries. If you don't make fishtails, you can still donate and let us know as we can have local kids create yours. This will be a great fundraiser that will raise nearly $80,000 AND we hope will bring much awareness to the cause!
Our goal is to stretch this out on display on Eliza's Birthday, November 16th. Please begin to send in your fishtails and donate now as it will take a while to link them all together :)
We will ask local news to cover the event (maybe national news!) After, we will disassemble the individual pieces and they will be given to the local Children’s hospital as gifts to patients that come through, and your name/location tags will remain on them.
THANK YOU FOR BEING PART OF THIS MIRACLE! PLEASE SHARE WITH OTHERS! All donations here go directly to Cure Sanfilippo Foundation, a 501c3 non-profit, created by Eliza's Parents to stop this disease. For more information and to follow Saving Eliza, go to www.facebook.com/ElizaOStory. For more on Fishtails for Eliza, go to www.facebook.com/FishtailsforEliza
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