Your share could raise £30
Before you go, did you know that simply by sharing this campaign, you could help it raise £30? It's an effective way to support the cause.No thanks
- Add on tab
- Pin it
Fibro Flare Magazine hasn't added a story.
Hi, my name is Beth, I have had Fibromyalgia for over 50 years. It is a chronic condition that is both debilitating and life changing. With widespread pain that affects every nerve, tendon and muscle. There is not a minute of any day that I am totally pain free despite many medications and gentle exercise. I am not alone, with approx 70 million other people like me worldwide, at different levels, from being able to work part time to being bed bound. I am editor/publisher of a free online magazine helping to support and raise awareness. Together with other groups (all voluntary), we are working endlessly on campaigns to help as many people with this condition as we can.
There is a very limited research budget which is used for treatments but, as yet, not one research project to look at the cause and cure of this condition, although it has been around for centuries.
Some months ago, I heard of a 4yr old girl who lies in bed crying every night with the pain in her legs and who then falls asleep during daytime pre school. Whilst this child has been given the medication for Fibromyalgia her GP says she cannot be diagnosed due to her age. An 11yr old boy, diagnosed Christmas Eve 2014, whose school life is severely impacted due to the chronic pain and fatigue.
There is an urgent need for change, research does not come cheaply or give quick results. Fundraising will definitely be a marathon and not a sprint but together we can and will improve the lives of our children and future generations.
I thank every one that gives even a small donation because it will make a difference.
HighlightsSee all activity21
Delete media item?
Delete this item from the media gallery? It will also be deleted from any related story update.
Set as ?
The campaign video will appear in social media and email.
The campaign cover picture will appear in social media and email.
The will appear at the top of your campaign page and in social media and email.
It will be removed from the top of your campaign and won't be used as default in social media and email. The will remain in the media gallery.
Add to a Facebook Page tab
You can add to a tab on any Facebook Page which you manage.
Please note that as of Nov 2017, only Pages with 2,000+ fans are able to install custom tabs.
How to remove a Page tab It looks like you don't have a Facebook Page yet. How to create a Facebook Page It looks like you don't have a Facebook account linked. Click here to edit your account settings
Share a link
Delete this story update?
Any pictures or videos will remain in the campaign's media gallery.
Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.
Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Tell us about the problem. Please fill in both fields below.
Record a video
Upload a video
Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.
Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.
- Most effective video length: about a minute.
- Maximum length: 5 min.
- You can preview or redo your video before you post it.
Heads up! The existing video will be replaced.
Email your friends
Join our team
Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.
Say it in video
Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.
Add a personal goal
Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.
We have a video!
We'd love to show you our campaign video. Want to take a look?
, you're already on the team.