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I am writing this to help one of my best friends, Robin Rohde; who has been diagnosed with 2 rare diseases, Dercum's and Lymphedema. If you can, please make a contribution. ANYTHING will be of help to her medical expenses.
What is Dercum's? Imagine having the flu, with all the aches and pains all over your body, times that by ten. You get muscle weakness daily with any small activities that have to be done. Then hundreds, if not thousands of non cancerous tumors growing in your body, but you not knowing where the next one is going to pop up. Each tumor is like a button, when pushed sends a radiating electric shock, stinging, burning, and stabbing pain to that part of your body. Sometimes the pain lasts just minutes, other times it lasts days or even weeks on end. It has taken Robin 8 years to be diagnosed because so many doctors won't listen or take the time to learn about it.
Lymphedema in Robin's body has been caused by these Dercum's tumors obstructing her lymph system, and the fluid has no escape. Her legs are so swollen, that sometimes she can't walk. Everyday is a struggle to walk with a cane. Picture walking on two concrete pillars that never decrease in size, hard skin & blisters form because her system doesn't drain properly. Because of this, she gets bouts of cellulitis at times and has to be taken to the ER. They give her heavy doses of 2 types of antibiotics but the only long term treatment is Lymphatic Drainage massage/compression gartments which are EXTREMELY expensive. They have to be specially made for her body and can cost THOUSANDS if you don't have insurance coverage. This is where she needs your help. If left untreated, these rare diseases are life threatening.
A car accident that she was in just a year ago has caused her conditions to worsen quicker. The medical bills have piled up from her 2 week hospital stay and trying to get treatment for these two diseases.
Please donate, if you can. ANY AMOUNT will be of help to her.
Thank you for your thoughtfulness and generosity!
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