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Sara Bajlo hasn't added a story.
Hi, I am Sara, Gabi's mommy.
Gabi is 7 year old little girl who just got diagnosed with terrible and fatal neurodegenerative disease, called Batten's disease.
She was healthy child, reaching all her milestones until age of 4, when she got epilepsy. Many AEDs but seizures got worse and worse. Then she started to loose functions. One by one. She already lost her sight and her ability to walk, but it's gonna be so much worse. She will be bedridden and without any function, until vital ones get affected. Her lifespam is between age 8-12.
There is no cure or treatment, there isn't anything we can do, except make her life as beautiful as we can.
She has one little (but financialy big for us) wish. She wants to go visit Santa Clause town in Finland. We want to take her this November, because we don't know how much time she has, and when she will be ina stage that is impossible to travel. That's why we need help. We don't have time to save money, we need help from familly and friends, to make her wish come true. Because she deserve it. This three years were all in hospital stays, doctors appointments, tests and she already lost a big part of her childhood, and disease will take even more. This is for her. This is to make her happy. This is for making lifetime memories. This is for bringing the smile on her face.
Thank you.
Love from Sara&Gabi
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