Help Ava's Family with Medical Expenses
$1,455 Raised
29% of $5k goal
26 contributors
3 Years running
Ava Rose will soon be the big #5! As she is getting excited for her birthday she is now paralyzed with some fear of what is coming next for her... Ava has struggled since birth with what they thought was colic, acid reflux and severe constipation. More ...
Ava Rose will be the big 5 on February 25th! She is starting to get excited for her birthday, however she is also fearful of what the future has in store for her. Ava has struggled since birth with what they thought was colic, acid reflux and severe constipation. Changes in her diet and daily medications make no difference. Her constipation is so severe it has extremely stretched her colon and we are told she now has what they call a floppy colon. When she tries to use the restroom, she is unable to empty herself out. The doctors have tested for Hirschsprung's Disease as well as motility testing, and biopsies, and have been unable to determine anything.

Ava has to endure such pain every few weeks as her belly fills and she is rushed to the hospital to be put through yet another traumatic experience for a little girl. During her last visit, she was so upset she busted blood vessels in her face and neck. When she is in the hospital, it takes days to clean her out and sometimes she even has to be put asleep to manually dis-impact her. They have even done several botox injections to her anal sphincter, nothing ever helps.

This last visit her family went home after 4 days with her treatment incomplete - they had a lot to think about. It was brought up last year for her to do invasive surgery and have a Cecostomy tube placed that her mother will use 2x a day to flush her out. She will be one of the youngest to have this procedure done, which could be for a few years or for life, we don’t know. It is heartbreaking all that she has gone through since being born. Her family feels that this is their last hope now to make her better and relieve her discomfort and give her a better quality of life. Her family has been told that her colon is starting to completely stop working.

Ava's mother is a single mom with Ava and her 9 yr old brother Connor. She works full time plus any OT she can to help save for these medical costs and the time she will be off work to care for her. She is just struggling to keep it all together and make sure bills are paid.

Please join me in helping to ease the medical burden on Ava's family. Lets allow them to focus on their family and what is best for Ava instead of worrying about how to pay for her vital medical treatments. Ava loves pretending she is Taylor Swift with her guitar! So lets show her we think she’s a rockstar too!
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