In November 2011, my friend Sheila Tynan was diagnosed with ALS, a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. As of today, she is confined to a wheelchair, her hands have lost all of their abilities, and her voice is not as it once was.

On Saturday, August 30 the community of Richmond is being challenged to hold the LARGEST ALS ice bucket challenge yet to be seen. Sheila will take part in the ice bucket challenge and share her story. We encourage everyone to come out and share this moment with her at Garry Point Park at 12:00 noon till 3:00.  Barbeque courtesy of M&M Meat Shops, Francis Road with proceeds to ALS.

This is a BYOIB event: Bring your own ice & bucket!

Here's a story about Sheila and Saturday's event on CTV News. It's a reminder that the #IceBucketChallenge is not about the hype; it's about the people with ALS who will helped by the monies raised.

Eighty per cent of people with ALS die within two to five years of diagnosis – unable to breathe or swallow. Ten per cent of those affected may live for 10 years or longer. Here's Sheila's story from 2012 in the Richmond News.

ALL proceeds will be going towards ALS research in Canada. You can donate to our campaign or directly to http://www.alsbc.ca/donate

Your support to ALS Canada will keep alive the hope of finding a cure for ALS through research programs and it will help support ALS Canada's partner units in their provision of quality care for those affected by ALS.

Let us keep the ALS awareness alive even after the social media fad is over. 

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