Help Fight For "Bailey"
$2,300 raised
57% of $4k goal
16 contributors
2 Years running
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Bailey was diagnosed with Menkes syndrome(kinky hair disease) January 31 2014. This is a disease where the body doesn't absorb copper. The life expectancy is 3 to 5 years. There is no cure for it but bailey is in a experimental study at NIH in Washington. More ...
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Bailey was diagnosed with Menkes syndrome(kinky hair disease) January 31 2014. This is a disease where the body doesn't absorb copper. The life expectancy is 3 to 5 years. There is no cure for it but bailey is in a experimental study at NIH in Washington where she has to go to NIH every 6-8 months, she gets injections for 3 years the shots are given to put copper into the body to help prolong life. She also has multiple seizures and other things that go on and is on multiple medications. We are believing God for a miracle for bailey. Thank you for your continued support for Bailey. Thank you for your kind words and encouragement, your support and your prayers have allowed use to face this challenge knowing that we have a army behind us. We are forever indepted to you.

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