We need your support for our life changing programs for our rare children. Our international outreach for SYNGAP children will come from the critical amount of information needed to drive finding more immediate theraputic solutions for our children, but we cannot do this without you.
The SYNGAP 3 Prime Meeting will bring together stakeholders that include families, researchers, and medical doctors. One of the primary goals is to maximize scientific resources and coordinate efforts to reach communities of SYNGAP patients and find ways to reach the undiagnosed, including the Autism and Epilepsy community. It will feature a broad range of topics related to SYNGAP mutations focusing on collected research, including published and unpublished data. Experts will lead discussions on current and future avenues of research.Topics will include natural history studies, clinical trial design and therapeutic targets for identification in model systems. Participants will gain valuable knowledge and collaborate together efforts to find faster pathways to therapies from theory to practice.
The money raised will help give stipends for families to travel from abroad, both internationally and domestic out of state, allowing them get needed information and hope for their children. Researchers and Clinicians will be able to speak to families up close and personal to help further their research.
It is projected that SYNGAP mutations affect tens of thousands of people worldwide and are suffering from this debilitating neurological disorder. Please help us make better lives for these individuals by accelerating research to find solutions to better their lives. Please share the message and help us spread awareness.
Our meeting will be held December of 2016 at Texas Children's Hospital in Houston,Texas.
Perks
- 4 claimed
- 96 remaining
Be a walking billboard for SYNGAP! With your $25 donation you will get our Bridge the Gap - SYNGAP Limited Edition T-Shirt. Please include your size in the comments.
- 1 claimed
- 4 remaining
SYNGAP and RARE Science are working together to raise money for the First International meeting for SYNGAP kids which will not only drive therapeutic solutions for SYNGAP but also kids with Autism and Epilepsy. Join us now by donating $100 and we will gift you or a child with a limited addition RARE Bear made through the RARE Science RARE Bear Army! There are limited amounts of these bears - to get one donate now!
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SYNGAP 3 Prime Meeting Community
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- 4 claimed
- 96 remaining
Be a walking billboard for SYNGAP! With your $25 donation you will get our Bridge the Gap - SYNGAP Limited Edition T-Shirt. Please include your size in the comments.
- 1 claimed
- 4 remaining
SYNGAP and RARE Science are working together to raise money for the First International meeting for SYNGAP kids which will not only drive therapeutic solutions for SYNGAP but also kids with Autism and Epilepsy. Join us now by donating $100 and we will gift you or a child with a limited addition RARE Bear made through the RARE Science RARE Bear Army! There are limited amounts of these bears - to get one donate now!
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