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Our little boy Jayson is 3 years old he is a SWAN, meaning he has a Syndrome Without A Name, part of his condition means he has spastic diplegia cerebral palsy. Jayson can not walk and needs a wheelchair for us to get him around - we need your help to fund a piece of equiment which will be life changing.
The firefly upsee - which was invented by a mother of a disabled child. It is a harness which enables children with motor impairment stand and walk with the help of an adult. And it's changing lives.
It is a revelation for many kids with neuromuscular disorders. Some have been able to stand and hug their little brother or sister for the first time. Some have waved at neighbours on their first ever walk along their own street. And some crossed the playground hand-in-hand with their best friend for the very first time.
They are just little steps – but they mean the world to Jayson and to us. The Upsee costs £269, we are asking for your help to raise funds towards this amazing lifechanging piece of equipment.
you can read more about the upsee here: http://www.fireflyfriends.com/upsee
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