MHE Coalition
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£265 Raised
53% of £500 goal
28 contributors
107 Weeks running
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Mylo was diagnosed with a rare condition called MHE when he was 2 years old and has already had 5 surgeries to remove bone tumours. MHE causes many other problems which Mylo has many of including an ankle and arm deformity and behavioural, ASD ... More ...

Mylo was diagnosed with a rare condition called MHE when he was 2 years old and has already had 5 surgeries to remove bone tumours. MHE causes many other problems which Mylo has many of including an ankle and arm deformity and behavioural, ASD symptoms.

MHE is a rare medical condition in which multiple bony spurs or lumps (also known as exostoses, or osteochondromas) develop on the bones of a child.

MHE can lead to the shortening and bowing of bones; affected individuals often have a short stature. Depending on their location the exostoses can cause the following problems: pain or numbness from nerve compression, vascular compromise, inequality of limb length, irritation of tendon and muscle, as well as a limited range of motion at the joints upon which they encroach. A person with MHE has an increased risk of developing a rare form of bone cancer called chondrosarcoma as an adult. Problems may be had in later life and these could include weak bones and nerve damage.

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