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MHE Coalition
£265 raised
53% of £500 goal
28 contributors
0 days left
Ended Sep 7, 2018

Mylo was diagnosed with a rare condition called MHE when he was 2 years old and has already had 5 surgeries to remove bone tumours. MHE causes many other problems which Mylo has many of including an ankle and arm deformity and behavioural, ASD symptoms.

MHE is a rare medical condition in which multiple bony spurs or lumps (also known as exostoses, or osteochondromas) develop on the bones of a child.

MHE can lead to the shortening and bowing of bones; affected individuals often have a short stature. Depending on their location the exostoses can cause the following problems: pain or numbness from nerve compression, vascular compromise, inequality of limb length, irritation of tendon and muscle, as well as a limited range of motion at the joints upon which they encroach. A person with MHE has an increased risk of developing a rare form of bone cancer called chondrosarcoma as an adult. Problems may be had in later life and these could include weak bones and nerve damage.

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