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Helen White hasn't added a story.
Grace is 10 yrs old, but she's not like most 10 yr olds, she can't walk, she can't talk, she can't communicate in anyway with the outside world apart from her beautiful smile.
Grace has an undiagnosed genetic disorder.
She has a huge list
of various problems which include:-
Microcephaly, Cortical visual
impairment & delay, No 3d vision, Epilepsy, Impaired swallow,
Gastroesophageal reflux disease, Severe Global developmental delay,
undiagnosed kidney problems causing regular UTIs, osteopenia (low bone
density) ... well you get the idea
She has many doctors, consultants and specialists who have for the past 9.5 years been trying to find answers, to find a diagnosis and as yet still haven't found those answers. We have accepted we may never get those answers but we will never give up looking, we will never give up on Grace.
Back in August this year (2013) we visited Tomcat in Hucclecote, Gloucestershire to try out one of their demo trikes. We were sceptical that it would be a successful visit but actually what happened was us getting blown away by how happy Grace was on the trike.
We video'd Grace being pushed around the car park by Bob, Tomcat's MD and designer. It was amazing to see.
In September we showed Grace's school physiotherapist the video, she was just as excited as we were, not only was Grace enjoying herself, but she was working muscles she doesn't usually use.
We really would like to get this trike for Grace, not only because she was so happy, but for the physiotherapy benefits and for her freedom. This will give Grace an alternative to being in her wheelchair, her only means of getting around at the moment.
HOWEVER, this trike comes at a cost, a HUGE cost. Each trike is individually built for a specific child, they will have add-ons specific to the childs needs, their physically capabilities and their development levels. Grace needs quite a lot of support, and alot of added extras, without which she would never be able to even sit on the trike let alone travel anywhere on it.
This trike will cost £2062, this is where you all come in. Please can you help us make this dream for Grace a reality. Thank you
You can follow Grace on her fb page here at Amazing Grace and you can read her blog too at http://helenswanmummy.wordpress.com/
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