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Anything helps and donations can be anonymous. Even the amount of a cup of coffee helps more than you know. We have piles of bills that we tackle as much as possible and also have to have round the clock care for me and kids.
Typical monthly bills on top of daily living:
$2.5-3,000/month caregivers
$1,750-2,000/month Mac medicines, medical food and supplies (medical food not covered under our policy unless she is in hospital- which I think is silly)
$1,500+/month past bills catching up/repayments insurance didn't cover
$6,000 from 2013-14 experimental medicines and infusions
$900/month repayment hospital and cancer center statements
...and it's not slowing down
UPCOMING HEALTH ISSUES:
radiation has begun...
Maceala ongoing needs for her liver disorder.
We still have some serious family issues going on and need your prayers for peace and tranquility amidst the fears and concerns of the future. I know we are to focus on HIM and keep it one day at a time, but it's so hard when I worry about John and the three kids. Life just seems so very fragile right now and I have to be honest... I'm scared. I'm so grateful for the prayers and encouragement of our faithful friends and that we have a God who listens to all.
I'm so exhausted but trying to make each moment count. One hour, one minute... etc.
Each day is a fight for life! Energy level is gone, hair gone, retirement accounts drained but we know who is in charge!!
Macaela also has a lot of needs as she still has her g-tube and medical food is costly and uninsured on our health insurance plan. Between her urea cycle disorder (liver) and her specialists, as well as Elizabeth with her cancer and kidney needs, it's a never ending cycle.
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Macaela had an idea of making crosses to help medical funds. This turned into a way to help keep PT happy with me using motor function and since I cannot work, a way to try to bring in much needed supplemental income. You can pick what type of cross or we can send you one of her choosing.. lots of varieties!
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- 2 claimed
Macaela had an idea of making crosses to help medical funds. This turned into a way to help keep PT happy with me using motor function and since I cannot work, a way to try to bring in much needed supplemental income. You can pick what type of cross or we can send you one of her choosing.. lots of varieties!
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