Thank you everybody. Our campaign is now over.
Aces for Aiyana-Fundraiser for Aiyana and CDKL5
$1,933 raised
64% of $3k goal
22 contributors
0 days left
Ended Aug 19, 2013
Our daughter Aiyana and approximately 600 other kids are battling with CDKL5, a very rare non-hereditary genetic disorder that comes with severe disabilities. Most cannot walk, talk or feed themselves, and many are confined to wheelchairs, dependent ...
Our daughter Aiyana and approximately 600 other kids are battling with CDKL5, a very rare non-hereditary genetic disorder that comes with severe disabilities. Most cannot walk, talk or feed themselves, and many are confined to wheelchairs, dependent on others for everything. Many also suffer with scoliosis, visual impairment, sensory issues and various gastrointestinal difficulties. Scientists and doctors do not know what causes CDKL5 mutations or the full spectrum of CDKL5 disorders at this time. With continued research and awareness of CDKL5, International Foundation for CDKL5 Research (IFCR) hopes to build a more comprehensive understanding of the spectrum of this disorder, and begin the search for a desperately needed cure.

The foundation is completely funded and managed by the families of CDKL5 kids.

We are hosting a benefit poker tournament on August 15th, 2013 in Lenexa, KS to raise money & bring awareness. Because space is limited, if you want a seat at the table you must be one of the first 48 people to get your donation to me! There are a LOT of people (outside of this invitation) invited to this event, so hurry! If we do get an overwhelming response, we will schedule a 2nd event soon after this one!

We are also adding a silent raffle! Even if you aren't interested in playing, come out & bid on some awesome items! Or, if you have items you would like to donate for the raffle, let me know!

Please consider making a donation even if you don't want to play poker or participate in the silent raffle! With this website, we tried to make it convenient for you to donate from the comfort of your own home. Your donation will be tax deductible and donation receipt will be sent out after the August 15th event.

Your contribution will greatly support the cause and hopefully help us find the cure for these little angels in their lifetime. Please clearly mention with your donation if you want a seat at the poker table.

To learn more about this disorder & the foundation, go to www.cdkl5.com.
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