Miracles for Marik
$1,720 raised
86% of $2k goal
29 contributors
5 Years running
Marik is a super cool, 10year old little boy who was just diagnosed with Osteosarcoma. Please join us in keeping him as positve as possible over the next year of treatment and beyond. This page will be used to lift him when he is down. Trust me, he ...
Marik is a super cool, 10year old little boy who was just diagnosed with Osteosarcoma. Please join us in keeping him as positve as possible over the next year of treatment and beyond. This page will be used to lift him when he is down. Trust me, he loves your comments and attention! Now, to help you get to know Marik a little. He is an awesome kid! He is so energetic and full of life. Never a dul l moment! He was born in Lake Charles, on June, 16, 2002. Great pregnancy, and delivery. When it was time to come home from the hospital, he failed his hearing test. The nurse told me that they had been having an issue with the machine, so she considered it a pass. Well, a year or so later, he wasn't really talking much. I talked to his pediatrician about it, and she assured me that he was normal. Another year passed, and he was still not speaking much, and had begun to make up signs for his words. I switched pediatricians, and she was shocked that we had been ignored. So, at age 3 he got his first pair of hearing aides! He really was doing well with them, until a little boy at school flushed them down the toilet. After that, it took me about 2 years to get him to wear them again. He was so far behind in his speech and language, that he was placed into a special education class. For the next 3 years we struggled to try and catch him up. But, he wasn't learning ANYTHING. He could do NO math, no reading, and couldn't even understand to write his name. That is when I made one of the toughest decisions ever. I placed him at the Louisiana School for the Deaf his 2nd grade year. He immediately began to thrive. He was reading writing at the top of his class. His speech and language improved. But, he was away from us all week long and only came home on the weekends. It was miserable. I would cry so hard when I dropped him off that I would vomit all the way home. We kept looking for a way out. My husband, Mariks dad is in the Navy, so we worked and prayed until we were moved to Connecticut. The reason we choose CT was because the American School for the Deaf is located nearby. It was like a dream come true! Marik would be able to get the education that he needed and live at home! I was so happy that things were finally falling into place. I even had a FB status about this year was going to be the best year of my life! So wrong! Well, we were set to move on July 1. On June 14, I took Marik and his little sister Tori to the pool. He dove off the diving board like a million times. The last time, he just started limping. He said his leg was hurting, and he wanted to go home. I really didn't think much about it, because he is a rough boy. Always hurting himself. We had crutches at home from a previous mishap, so I put him on those. We made the move on July 1. Marik was still limping off and on, so we brought him to the doctor as soon as we arrived. They said he had a very small fracture, but something else was strange. He had what appeared to be a shadow on the x-ray. From there, we were referred to an Orthopedic surgeon, who did several more tests and referred us yet again. At that point, Marik was sent for a bone biopsy, which he rocked! And, the news was good, NO Cancer! The whole family was so happy. Surgery was scheduled for the following week, to remove what they thought was a rare bone cyst. About 30 minutes into surgery, the Dr. stopped the procedure, and pathology came back with the worst news...OSTEOSARCOMA. We were told that his tumor is very large, complex and aggressive. He will have 12 intense weeks of chemo, then extensive surgery. Surgery at this point will be an amputation of the lower half of his right leg, and lower knee. After surgery, he will have another 29-40 weeks for intensive chemo depending on how the tumor is responding. Each time he gets chemo, it will be inpatient, so we will spend much of the time in the hospital to look forward to. Two of the chemo drugs he is taking, are especially mean. He will be so compromised, that he is unable to attend school at all this year. I feel so terrible for him. He has already gone through more than most kids, and now this. I am trying to stay positive, but each day seems to bring a new battle. He is being treated at Yale New Haven Children’s Hospital in New Haven Connecticut, and they are AMAZING! Just to finish up, a few things about Marik. He loves: X-box, soccer, football (the Cowboys, and Texas Longhorns), skateboards, motocross...pretty much anything action packed. He has always been a little wild and crazy. He has never had any fear, which may help him under these circumstances. He has 2 sisters, Shellbi 15 and Tori 7. His favorite music is country, Blake Shelton is the best(he saw in him live)! Colors, are red, black, and neon green. His bedroom is Rock and Roll, and he loves guitars and drums! He has an electric guitar that is bright red! Everyone who knows him, calls him Little Man, or just Man. I call him Little Pickle most of the time too. He is an a
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