Colby's Alliance Against Lyme Disease
$1,080 Raised
12 contributors
2 Years running
Colby's Alliance was formed by friends and family to raise money for Colby's medical treatments and to promote awareness of the difficulties for Lyme Disease patients in Canada. More ...

In November 2013 Colby came down with the flu. We know it was the flu because he was kind enough to pass it along to his mother. When he recovered, he attended school for two days and on the Tuesday evening he returned home from playing hockey (he was team captain last season) and felt horrible. The 'flu' was back with a vengeance.

Colby slept 14-16 hours at night and then had 2-4 hour naps during the day. His throat was sore, his body ached, he had headaches, and a fever that ranged from 101 to 104. He was taken to the clinic where they tested for mono and strep throat. The tests came back negative. Of course when test are negative no one calls, no one follows up.

Colby was taken to his family doctor and he was tested for mono and strep again. Negative. No call, no followup.

As Colby's symptoms remained the same, he was taken numerous times to various doctors and was given countless blood test and even an ECG. However, when it was mentioned that Colby had found a tick crawling on him in November the Lyme disease test wasn't given because he never presented with the classic bull's-eye rash.

In late December he started feeling dizzy and had a hard time walking without holding on to something. His gait looked contrived, like he was imitating an ill person. To date, unfortunately, he still walks with a bobbing head and a lean toward the right. When he was taken to McMaster Children's Hospital the doctors tried to 'fool' him out of walking that way, they couldn't and the EEG they ordered came back negative so it wasn't neurological. We were told to learn to live with it.

In early March we had a few really nice days and Colby felt somewhat better, he went to Florida for March Break and felt relatively good. As soon as he got back to Ontario it was like we were back to square one and he felt awful. Now the doctor thought there was a psychological component to his illness and we were referred to a psychiatrist.

On Colby's birthday, March 29th, after asking for months, he was finally given a Lyme test. We were told that it came back slightly positive, negative, negative. Which apparently means negative to the infectious disease specialist.

Colby was taken to an area naturopath who examined him and clinically diagnosed him with Lyme disease and referred him to a NY state Lyme specialist. He is currently undergoing intense antibiotic treatment and is expected to make a full recovery by December 2014.

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