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Our son, Ryan, is 11 years old and suffers with Miller Dieker Syndrome. He needs total care for all of his needs and daily activities. He is now 74 pounds and getting so heavy for us to lift. We have sent a letter of medical necessity and applied twice for a lift to Ryan’s Medicaid but have been denied even after appealing. His 12th birthday is coming up on June 21st and the only thing I can think of that he needs is a manual ceiling lift. This will help us safely get him from his bed to his wheelchair or to his bath chair. He has been getting bed baths for a year now despite having a rolling bath chair and a walk in shower to use because it is no longer safe for us to lift him especially when he is wet from the shower. He also goes many places throughout the week (church, therapy, and family outings) and we do not want him to be limited from these activities because we can no longer lift him and put him in his wheelchair. We do not want him to become bed bound. We have found a manual ceiling lift and track system at the lowest price possible that will meet his needs and have attached pictures. Thank you for sharing or story or donating to his fund for his 12th birthday!
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