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Karina Macfarlane hasn't added a story.
Seven years ago our mother was diagnosed with a rare form of Leukemia, chronic myelogenous leukemia. Thankfully with a breakthrough in medicine, about 5 years before she was diagnosed a targeted drug therapy was launched. The drug that keeps her in remission, along with many other sufferers of this disease is called Gleevec, known as the miracle drug. Patients being treated with this have been kept in remission for years, and live a fairly normal & healthy life. The only down side to this drug is the cost, patients have to take 1 dose (pill) per day for the rest of there lives. This drug, and other classes now being used, is the only therapy besides a bone marrow transplant, which is a 50%-50% survival rate (if the Gleevec does not work with the patient.)
The name brand of Gleevec costs $4,000/month, which she was on until last May 2013, when a generic version was introduced, costing $1,100/mo. The Ontario Drug Program and employment benefits cover some of the cost, but it still has been about a $5,000-$7,000/year burden for her, which adds up over 7 years! As you can image this has been a huge burden to bare for my mother & father, and their debt burden has increased as a result.
Gleevec is a life saver for our mom, and we want her to be able to continue her therapy, without fear of having to miss doses due to financial concerns. She has continued her fight, so strong, and too proud to ask for help. At this time she is still in remission, which is exactly where we want her to stay! She is 49 years young, and has a lot of life yet to live!
Any contributions will help our mother & family immensely no matter what the amount. We thank the people who do in advance as our mother is our hero!
Alahna, Jack & Klara Macfarlane
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