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A little about my mission... My name is Rachael Reyna and on February 16, 2012, my 3 ½ year old daughter, Ava Grace Reyna, never woke up from her night’s sleep. Ava suffered from seizures and was diagnosed with Epilepsy. She was on medication to help control the seizures and seemed to be doing very well. The autopsy report shows she died of “natural” causes because there was no evidence to suggest otherwise. SUDEP (Sudden Unexplained Death from Epilepsy) is a term that more people need to be made aware. 2 1/2 months later, on April 20, 2012, my husband, Carlos Reyna, father of Ava Grace, lost his 8 ½ year battle to Carcinoid Cancer. When Carlos was first diagnosed with this “rare” cancer he was told that the surgery he had to remove the tumor, found in his lung, was the treatment for this type of cancer and because it was removed he was cured. Two years later the cancer metastasized to his liver and bones. During his 8 1/2 year battle, Carlos underwent a variety of surgeries, chemo therapies and radiation treatments, shots, blood transfusions and even traveled to Basal Switzerland twice for a treatment not yet FDA approved in the States. This once “rare” cancer is becoming more prevalent and we need the research and education to try and find a cure.
FUNDRASING EVENT
To benefit the Danny Did Foundation, a charity focusing on seizure-related epilepsy deaths in children and the Carcinoid Cancer Awareness Network.
The second annual "Fore" Ever Loved Charity Golf Outing in
memory of my daughter Ava and husband Carlos has been set for Friday,
August 8, 2014 at Ruffled Feathers Golf Course in Lemont. The link to
register to attend the event (golf or just dinner) is http://bit.ly/2014forever.
I am also looking
for businesses to sponsor the event with monetary donations as well as
items for the silent auction. If you are able/willing to help or know
someone please pass along the information.
Last year we raised
$40,000 and this year my goal is $75,000. We can do it!!! 2014
"Fore" Ever Loved Golf Outingevents.constantcontact.com
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