Your share could raise £30
Before you go, did you know that simply by sharing this campaign, you could help it raise £30? It's an effective way to support the cause.
No thanks- Pin it
- SubscribeUnsubscribe
- Embed
Shereen Fares hasn't added a story.
EHLER DANLOS SYNDROME
Ehler danlos syndrome is a group of inherited conditions that affect collagen proteins in the body. People who suffer with EDS dislocate joints on a daily basis, have stretchy skin, loose joints and fragile body tissues.Collagen is what holds our bodies together and supports various body tissues. it is found in tendons, cartilage, ligaments, bone, skin, blood vessels the gut and spine.
A lot of people who suffer from EDS have a life expectancy into there 50's and some die much younger due to vascular issues, cardiology issues and are prone to hemorrhaging in the body especially in the brain due to balooning of arteries EDS is a degenerative condition and there is no cure.
most people with EDS use a wheelchair, walking aids and have support braces to prevent dislocations. operations can be life threatening even minor surgery
The money that is raised will be used for awareness building all over the uk, for genetic research and to help support families who suffer with the condition
In october EDS UK will be holding a Residential Conference from the 24th-26th....come along and educate yourselves and meet people who suffer with Ehler Danlos Syndrome.
for more information visit www.ehler-danlos.org/online-shop/events/eds-uk-s-residential-conference-2014-detail
May is Ehler Danlos Syndrome awareness month.....I however am making it my life mission to build awareness and raise enough money to help with genetic testing and help those who are suffering with EDS. I am a 29 year old woman with Ehler Danlos Syndrome and have a beautiful 3 year old daughter who also has EDS I struggle on a daily basis to live a somewhat normal life but I am always smiling and am probably one of the most positive people my friends and family know....I need to raise enough money to enable the research is done and the awareness has been built to a level where the next generation can have even more help available and a better genetic understanding so please dig deep and donate to a well deserved cause and to all.....always stay blessed and no matter how hard life gets keep smiling!
Perks
- 2 claimed
YUM YUM YUM..Cake & treats hamper from Yumelli's Custom Cakes filled with lots of goodies....cake pops, chocolate truffles, sweety kebabs and a Zebra print cake. Yumelli's is run by people with Ehler Danlos Syndrome and the profit they make is donated to awareness building of Ehler Danlos Syndrome and various other rare and invisible disabilities and illnesses.
Highlights
See all activity24Activity
- 2 claimed
YUM YUM YUM..Cake & treats hamper from Yumelli's Custom Cakes filled with lots of goodies....cake pops, chocolate truffles, sweety kebabs and a Zebra print cake. Yumelli's is run by people with Ehler Danlos Syndrome and the profit they make is donated to awareness building of Ehler Danlos Syndrome and various other rare and invisible disabilities and illnesses.
Delete media item?
Delete this item from the media gallery? It will also be deleted from any related story update.
Set as ?
The campaign video will appear in social media and email.
The campaign cover picture will appear in social media and email.
The will appear at the top of your campaign page and in social media and email.
Reset ?
It will be removed from the top of your campaign and won't be used as default in social media and email. The will remain in the media gallery.
Embed
Share a link
Delete update
Delete this story update?
Any pictures or videos will remain in the campaign's media gallery.
Report campaign
Report submitted
Thank you. We take reports like yours very seriously. Our goal is to keep the community safe.
Please know that we may contact you for more information, but that we won't notify you personally of our decision. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Thank you. We've already received your previous report. If the campaign remains available within a few days, it's likely that we determined it not to be in violation of our policies.
Tell us about the problem. Please fill in both fields below.
Record a video
Upload a video
Nothing grabs attention for your cause like a personal video. Take a minute or two to record one now. Record a short video message of support. Or upload one from your device. You can preview or redo your video before you post it.
Nothing grabs attention for your cause like a personal video. Upload a short video message of support. Upload a short video message of support. Or record one right now.
- Most effective video length: about a minute.
- Maximum length: 5 min.
- You can preview or redo your video before you post it.
Heads up! The existing video will be replaced.
Email your friends
Join our team
Tell people why our cause matters to you. Your personal message will encourage others to help. Easy, effective, optional.
Say it in video
Short personal videos by supporters like you are incredibly powerful. Record one right now and you'll help us raise more money. Easy, optional, effective.
Add a personal goal
Set a personal fundraising goal. You'll encourage more contributions if you do. And rest easy. There's no obligation to achieve your goal or bad consequences if you don't. Easy, optional, effective.
We have a video!
Video thumbnail
We'd love to show you our campaign video. Want to take a look?
, you're already on the team.