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Curtiss is a 44 years old male with Primary Progressive Multiple Sclerosis. This is the most severe of all forms of MS with a rapid downhill progression. There is no treatment for this type of MS.
Curtiss is not only a fighter of MS he is also known as a Husband,
father and grandpa.
He was diagnosed with MS April 2010 at the age of 37. At the
time he was working at Honeywell, where he had been for 15 of his 17
year career in U.A.469 Refrigeration. Within 3 months after his
diagnosis, he had to retire on disability. He now misses out on
everyday life events, such as being a grandpa. His grandson, Julian,
is now 6 and Curtiss has not been able to attend karate practice, swim
class or even grandparents day at school.
His first symptoms were loss of dexterity in his hands and loss
of coordination in his legs. From that point on he continued to
digress with repeated hospital visits due to falling numerous times
which caused multiple head injuries, nasal fractures and 3 long days
spent in the ICU.
By February 2011, Curtiss was in a wheel chair. By June of
2013, he was no longer able to drive. He was fully dependent on his
wife who had to quit her job and become his full time caregiver. He is
unable to shower, get in and out of bed and perform normal day to
day
tasks without her help.
He has had to remodel his bathroom and various parts of his
home to make it handicap accessible at great expense to him. Curtiss
has had to upgrade his current wheelchair based on his every day
needs. Since he is no longer able to stand on his own, he needs a
wheelchair that will stand him up so that he can get in and out of bed
and transfer to his shower seat.
Most of the cost of the expensive new wheelchair will be paid
by his insurance company but he needs money for his copay which may be
as high as $10,000.
He has difficulty to get into his vehicle. A van with a ramp
for transport will make it easier to accommodate his needs In order to
get a used van he needs around $55,000. A newer van should allow him
years of vehicle usage with minimum out of pocket repairs and
expenses. He is confined to his house now due to lack of transport.
Curtiss now misses out on his weekly guys night at the local
restaurant down the street. He can’t spend the quality time with his
wife on date nights due to the struggle of not being able to move in
and out of the vehicle. He is stuck in the house waiting for his
grandson to run in excited to tell his grandpa about earning his next
belt in karate or moving into the next level in swim class. His
grandson tells him daily “when you get your chair grandpa we will go
to the park”.
This is where you come in. Please help
Curtiss get his freedom back and donate to help fund mounting expenses
for his wheelchair and a handicap van.
The goal for his fund is $65,000.
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