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Caellan (Cael) Carmichael is 14yrs old. Cael has a long journey ahead of him. He is diagnosed with Intractable Seizures, Dysautonomia (DESCRIPTION BELOW), RSD/CRPS (a chronic nerve pain disorder), and migraines. All of his disorders effect his balance, motor skills, difficulty with speech and forming sentences, and memory.
Cael's disorders combined are causing his health to decline rapidly. As a result, Cael's doctor want him to start therapys again. His therapys will include Biofeedback, Carniosacral therapy, and Occupational Therapy.
Most of Cael's therapys are done at UCLA and his insurance is very poor and covers very little. Most of the expence is my out-of-pocket cost, PLUS requires ONE nights per week in a hotel by UCLA (again, my out-of-pocket). As a single Mom who has to stay home to care for Cael, our income is very limited.
Cael is also having more testing done for brain surgery and his heart issues. He is looking at having at least 1-2 more surgeries in the next 6 months. MOST of his doctors are about 2-3 hours away and result in extra monthly expences.
THANK YOU FOR ALL YOUR SUPPORT, LOVE, AND PRAYERS !!!
**** Dysautonomia = Dysfunction of his Autonomic Nervous System.
Your Autonomic Nervous System controls ALL of your bodies
automatic functions. EXAMPLE: Your Heart Beating, Breathing,
Digestion, Blood Pressureect.
Cael's system is basically
shutting down (becoming dysfunctional). This is a progressive
disorder, and there is nothing that can be done to slow it down or
stop it.
Cael is scheduled to start his therapy's Immediatly. I need to book
the hotel rooms in advance and pay for the 1st month of therapy's in
advance.
ANY DONATION IS HELPFUL !!
Biofeedback = $400 a month
Craniosacral Therapy = $500 a
month
Occupatioal Therapy = $400 a month
Acupuncture = $0 (Done by Students) Healing Touch = $0 (Done by students)
Hotel = $640 a month (with UCLA discount). We are on a housing waiting list, so this should drop to about half eventually + I do Priceline Hotel when available in the area needed, to save money)
**** This is NOT including the extra gas and toll fees every week AND the above are MY out-of-pocket expences.
My income is VERY limited, as I have to stay at home to care for Cael's needs and be available for his therapy schedule and hospital stays and when he is seizing. I do get paid In Home Support Services to care for his needs, but it is VERY limited hours.
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