Standing By Noah
$1,600 raised
8% of $20k goal
14 contributors
46 Weeks running
Noah is 9 years old and has spastic quadriplegia cerebral palsy. He is unable to sit, walk, talk, crawl or self-feed but is cognitively very aware. We are trying to fundraise for Noah's out of pocket, medical therapy and equipment costs.

ღ¸.•´¸.•*´¨) ღ ABOUT NOAH ღ¸.•´¸.•*´¨) ღ

Noah Mitchell Warden was born December 23, 2008, weighing 9lbs and 1oz by emergency c-section at 8:51am. Noah did not breathe or have a heartbeat for the first 13 minutes of his life. He was taken to Children's Hospital in order to have a procedure done known as brain cooling in attempts to minimize damage caused by perinatal asphyxia. Noah's brain cooled for 72 hours after which time the hospital ran an MRI and an EEG to determine the extent of the damage. Unfortunately, the results came back with devastating news. Noah had suffered "global damage" to his brain. As a result the prognosis was grim. They said Noah would mostly likely never walk, talk, eat or even breathe on his own. Today, Noah has the diagnosis of hypoxic-ischemic encephalopathy (HIE) resulting in spastic quadriplegia cerebral palsy with athetoid movements, with severe SPD and a history of seizures. He is unable to sit, walk, talk, crawl or self-feed but is cognitively very aware and communicates using an AAC eye gaze device. Noah's miracle has brought our story to all of you.

ღ¸.•´¸.•*´¨) ღ

It's been an uphill battle for several years now when it comes to obtaining medically necessary and theraputic adaptive equipment and items for Noah.  Noah is on a state Waiver and EPSDT Medicaid however, both are continually entering denials on Noah's behalf as direct retaliation and retribution for his mother being an outspoken parent advocate in the community included but not limited to exposing CCB (Community Centered Board) funding abuse and fraud.  As such, all of Noah's requests are being continually denied.  Each denial undergoes the appellate process and all denials have been reversed before an Administrative Law Judge, however the State files something called an Exception to Initial Decision which voids any appellate Judge's ruling rendering the appellate process moot.  (I know it's truly insane they have the legal right to void a Judge's ruling).  But until there is legislation preventing them from doing so they will continue doing this to countless families including ours. 

Even though there is funding that Noah should be able to access for this help, he can't.  He's gone nearly three years with minimal funding assistance.  The out of pocket costs are exorbitant and overwhelming and Noah is continuing to do with out things he needs for his daily living needs and quality of life.  The State is roadblocking nearly all requests large and small intentionally.

While, we have pursued two District Court lawsuit cases against both Noah's CCB and State Medicaid, it takes a large amount of time - sometimes years from start to finish when it comes to legal cases while Noah continues to do without.  He needs help now. 

We are humbly asking you for your help.  We're genuinely at a point where we can no longer do this without some significant help or heroes to enter Noah's life. 

Some of the items Noah needs and that are supported by his treating therapists by recommendation and treating physician prescription: 

  • Physio-Roll Exercise Therapy Fitness Ball sized 21-3/4 in.  Cost $47.99
  • Gymnic Rody Horse Max.  Cost $115.00
  • Gooshy Adaptive Switch.  Cost $123.95
  • Enabling Devices Motorized Scooter Board.  Cost $809.95
  • Abilitations Integrations SensaRock.  Cost $229.00
  • Carpet Saver (Yearly cost)  Cost $536.67
  • TFH Foldaway Swing Frame.  Cost $239.00
  • Rockerski.  Cost $719.00
  • Massage Mat.  Cost $149.99
  • Somatron Body Pillow $1,999.00
  • Mygo Leckey Tour Base & Supporting Wheelchair Accessories. PAR Quote Cost: $4,392.00
  • Sensacalm Weighted Blanket. Cost $254.95
  • Duet Wheelchair Bicycle Tandem.  Cost $8,995.00
  • Sweedie Kids Extra-Large Bibs (12 Count) Cost: $144.00
  • Special Tomato Seat Size 3 with Roller Base.  Cost $1,257.76
  • Power Wheelchair Sunshade Custom Order & Made.  Cost $112.00
  • Special Tomato Large MPS with Push Chair Base. Cost $5,161.29
  • SOS Sleep Pod. Cost $1,556.00
  • MSI Custom Molded Seating.  Cost $6,882.00
  • XRover All in One Buggy/Stroller for teen-adult.  Cost $2,992.00
  • Gaitway Walking Assistance/Frame & Harness.  Cost $3825.00
  • Grillo Gait Trainer w/Headrest $4,996.00
  • Ipad Pro 512GB $899.99
  • Hensinger Head Support $124.99
  • Obi Feeding Device $3,600.00
  • Wheelchair/Sensory Jacket.  Cost $45.00
  • Hugglepod Outdoor w/stand. Cost $389.00
  • Evac Stairs Chair 300H.  Cost $1,495.00
  • Hydrolatum Cream (2 pack).  Cost $60.23
  • Yogibo Max.  Cost $252.77
  • Rambutan Bamboo Socks 3pk.  Cost $16.20
  • Abduction Wedge.  Cost $36.75
  • Saline Swabs (monthly)  Cost $62.00
  • StaCool Child Vest.  Cost $190.00
  • Medline Dentips Oral Swabsticks, Blue 250 Ct. Untreated (Per Box).  Cost $39.35
  • TFH Bouncing Chair.  Cost $239.00
  • Kickee Sensory Socks 3pk.  Cost $13.00
  • ECR4Kids SoftZone Padded Mirror.  Cost $136.39
  • GoTo Seat Pressure Relief Cushion.  Cost $99.00
  • Leeway Pelvic Positioning.  Cost $350
  • Leckey Waistcoat Support.  Cost $215

- "A true hero isn't measured by the size of his strength, but by the strength of his heart." — Zeus, Hercules.





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