Tia Staley Walk for CDKL5 Research
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$2,425 Raised
29 contributors
0 days left
Ended Oct 22, 2014
Walk of Hope!
Most individuals with CDKL5 disorder have gait abnormalities and are unable to walk. Tia will walk 1K annually with family, friends and generous donors like you to raise funds for CDKL5 research.
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Walk of HOPE!

Tia Staley is a ten year old girl diagnosed with CDKL5 Disorder, it is an x-linked genetic disorder that affects mostly females.  Most individuals suffer from early-onset difficult to control seizures. Many also have gait abnormalities and are unable to walk.

Tia will walk 1K annually with family, friends and generous donors like you tor raise funds for research, bringing HOPE to all diagnosed with this rare disorder.

This is a signature CDKL5 Canada event and all proceeds will go to CDKL5 Canada, visit the website at:  www.cdkl5canada.ca 

 

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