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John Zimnoch runs Yorkshire marathon for Tia
$1,510 raised
22 contributors
0 days left
Ended Sep 3, 2015
Tia Staley is a 9 year old girl diagnosed with a rare x-linked genetic disorder called CDKL5 disorder.  One of the first symptom is early onset difficult to control seizures that begins in the first few months of life.

Tia Staley is a 9 year old girl diagnosed with a rare x-linked genetic disorder called CDKL5 disorder. 

One of the first symptom is early onset difficult to control seizures that begins in the first few months of life.  Tia had her first seizure around 4 months of age.

Research is underway worldwide and with your financial support we can pursue the research into finding a cure for Tia and other children diagnosed with CDKL5 disorder. 

All funds raised will go directly to CDKL5 Canada to pursue such research.  For more information about the disorder or to donate directly to the charity please visit cdkl5canada.ca

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