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Caregiving for adults with Down syndrome
$170 raised
34% of $500 goal
7 contributors
6 Years running

The Road We've Shared is the online community designed to meet the specific needs of people who love and support adults who have Down syndrome.  Existing groups tend to focus on young children. This is the first community created by and for the majority population of adults with Trisomy 21.  Our loved ones are the first generation to be fully "mainstreamed" in public education.  Our expectations for adulthood include opportunities for creative and individualized solutions.  We need access to different resources - i.e. legal concerns about guardianship, job and social opportunities, state laws that affect services, adult health concerns including the link to Alzheimer's disease, and ideas for accessible living spaces, either at home or within the community . Through an online community, we can support each other and provide caregivers and self-advocates a venue to have their voices heard, even if it's just to tell their own personal story. The Road We've Shared values and respects all perspectives on how we got here and where we're going.

We are currently raising funds to cover the costs of registering our group as a non-profit organization.

Please consider helping us reach more people and grow this important resource.


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$10 USD
Contributor Badge
  • 5 claimed
"I Helped Build The Road" - A special edition digital image (a different version of the one shown) that recognizes your contribution to The Road We've Shared and its mission along with your name on the list of contributors on our website.
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