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This is our Stan, he is 7 years old and as you can see loves everything all 7 year-old boys do. He has a very rare metabolic condition which means that his body does not process protein properly. Until he was 8 months old Stan was healthy and developing normally then he got a vomiting bug and a chest infection and wouldn’t eat. He became very sick very quickly and suffered brain damage to the area of the brain which controls all muscle movements. Stan had to learn to do everything again only now it’s much more difficult because he has to contend with extra muscle movements too. He has learnt to eat again (crucially) and sit up and crawl and walk with support but everything takes longer and saps his energy. We have had brilliant help from so many different people and departments of the NHS and Education but their funding only goes so far so now we are trying to raise £7000 to buy a Trekinetic K2 all-terrain wheelchair so we can get Stan to the beach and for a walk in the woods etc as he is fast growing too big to be carried and the wheelchair he has is really for pavements and does not cope with mud, sticks, sand and snow at all.
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