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This is our Stan, he is 7 years old and as you can see loves
everything all 7 year-old boys do. He has a very rare metabolic
condition which means that his body does not process protein properly.
Until he was 8 months old Stan was healthy and developing normally
then he got a vomiting bug and a chest infection and wouldn’t eat. He
became very sick very quickly and suffered brain damage to the area of
the brain which controls all muscle movements. Stan had to learn to do
everything again only now it’s much more difficult because he has to
contend with extra muscle movements too. He has learnt to eat again
(crucially) and sit up and crawl and walk with support but everything
takes longer and saps his energy. We have had brilliant help from so
many different people and departments of the NHS and Education but
their funding only goes so far so now we are trying to raise £7000 to
buy a Trekinetic K2 all-terrain wheelchair so we can
get Stan to the beach and for a walk in the woods etc as he is fast
growing too big to be carried and the wheelchair he has is really for
pavements and does not cope with mud, sticks, sand and snow at
all.
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