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Nearly 5 years ago, Rome Torti was diagnosed with an
incurable brain tumour, with a life expectancy of 2 months. He's
been fighting it ever since. Unfortunately, sometimes love isn't all
you need. Sometimes you need help too.
This is a love story.
About my friends Rachel and Rome.
They met… fell in
love…
And it was brilliant.
One day, Rome started acting funny.
Rachel nagged him to
see the doctor.
And the reason he was acting funny?
He
had a brain tumour. The size of an orange.
It’s called a Giloblatoma Multiforme Grade 4 Malignant Brain
Tumour.
(Although we have a few other rude names for it)
And it’s incurable.
On average, people who have this tumour live about 2 months.
Not our Rome.
That diagnosis was 4 & ½
years ago.
Oh, the docs also said after chemo, Rome & Rachel wouldn’t
be able to have kids.
Introducing Ryder.
The miracle
baby!
Rome and Rachel have done everything to fight the tumour.
Surgery. Chemo. Radiation. They embraced natural therapy. A new
lifestyle – supplements, oxygen therapy, and an experimental German
treatment called Oncothermia that cost a lot of money.
They
tried every single suggestion people told them about.
And
something worked.
They stunted the cancer growth.
It
didn’t go away. But it stopped growing.
But the thing with incurable brain tumours?
They grow
back.
And recently, Rome got the news that the cancer has
grown again.
Quickly. Aggressively. Horribly.
They sold their house, car and cashed in their savings and
superannuation.
They tried the German therapy again.
They hoped.
This time, it didn’t work.
They had nothing left… but
that hope.
And each other.
(Oh, and this bugger of a
brain tumour).
GO AWAY ALREADY!
With nothing left to lose, they heard about Charlie Teo - a
brain surgeon who is the best in the biz.
They begged for him to
take a look at Rome’s case.
The case with no hope – but their
own.
Dr Teo reckons there’s a chance he can do something for
Rome.
Not cure him – but buy him time.
Years.
And for
a little boy who loves his Dad?
Years are a lifetime of
memories.
If you could beat cancer simply by love, this thing
would be gone.
But unfortunately, sometimes love isn’t just all
you need.
Sometimes you need help.
And superhero brain
surgery isn’t cheap.
Rachel and Rome have amazing friends and family who have dug
deep.
But now, they need the help of strangers too.
There are times this world can feel big.
And times it
can seem small.
This is one of those times.
We all have
someone we love with all our hearts.
Someone who reminds us
hope is still possible.
Even when it seems like it’s not.
Rachel and Rome are fighting for a future.
With their
son...
...With each other.
They believe. They believe.
They believe.
They will never, ever give up.
And there
isn’t anyone who can’t relate to that.
This festive season – you can make a difference.
Your family can give this family a chance.
Your family can give this family hope.
Hope for Rome to
beat this cancer.
For Ryder to get those years with his Dad.
A chance for a happily ever after to this love story.
Every little bit helps.
AN UPDATE - Dec 26, 2013
We began this campaign because we
believed in the power of people and we hoped for a Christmas miracle.
It turns out we were rewarded by both.
People were touched by Rome, Rachel and Ryder's story. They
rallied. They shared the story with their friends. They dug deep. They
believed in miracles... and together, we made one happen. In four
days, we raised $70 000 to pay for Rome's brain surgery.
Two days before Christmas, Dr Charlie Teo operated on Rome.
About seven hours later, he emerged and admitted he had underestimated
the tumour. He described it as "very messy". He said that of
the 8000 tumours he had operated on, Rome's was one of the worst.
He let us know things hadn't gone to plan.
Rome is paralysed down his right side. His speech is affected.
The doctor removed most of the devastating tumour - but the news that
was supposed to fill our hearts with joy was tainted by a harsh
reality - Rome hadn't emerged without some serious battle scars.
The path to their future together is still pretty bumpy. But, as
Dr Teo said, "This is one guy who really loves life. I get the
feeling this isn't going to stop him."
Rome has a board above his hospital bed that lists his goals.
Number one on the list, in big bold lettering, is "To go
home".
We know you have donated, we know you have helped above and
beyond what we could have hoped for. But we still need your help -
because now, we need to bring Rome home to a rehab hospital on the
Gold Coast.
Rome needs to travel by Air Ambulance from Sydney to his
hometown on the Gold Coast. He can return to a place where he can
literally get back on his feet surrounded by his support team of
friends and family - and Rachel and his family can come home too.
The doctors are confident Rome will one day walk again, but he
has a huge fight ahead with rehab - and getting him back where he
belongs is just the beginning he needs. Without the surgery, Rome
would not have been with us this time next month. Without your help -
he would have died. Now, we need your help to bring Rome home and
start the next chapter of the rest of his life.
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