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Sirena Wiley hasn't added a story.
At this time our family is being bombarded with medical problems. I myself will have surgery this month to have my gallbladder removed. We have 3 children, one with special needs. My husband will have to take off work. Our son requires around the clock care for his condition. Ben Jr was born with JEB (Junctional Epidermolysis Bullosa) he is 2 years old and he is in needs a feeding tube. We will travel 3 hours north to seek the medical care that he needs to have a g-tube placed in his stomach. Ben Jr will have a regular appointment then they will schedule surgery. We will take a total of 3-4 trips, one trip will require a 3-4 night stay in Orlando Florida. He needs this g-tube for added calories daily to help his skin and development. We pray that this month goes by and we can all get back to normal. This Christmas will not be a normal Christmas for us, we are barely making ends meet.
To learn more about EB please go to www.debra.org
Please, help us by sharing, donating, and most of all praying! Thank you and God Bless.
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