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Shannon Harrison hasn't added a story.
Cole was diagnosed with Autism with Receptive-Expressive Language Disorder and Global Delay in 2011. He requires speech, occupational, and physical therapy sessions weekly which are very expensive. (With the severity of his speech delays, he would benefit greatly if we were able to afford him 2-3 sessions per week.) He will likely require therapies for many more years, possibly the rest of his life. . .
Gage has a VSD heart murmur, brain abnormalities which must be regularly monitored, and he is hypotonic which has led to physical and mental developmental delays/challenges which also require the same therapies as Cole along with many trips to Nationwide Children's Hospital monthly.
We have a high deductible health plan which means by the end of each year we owe a minimum of $3600 and a maximum of $6500 to all of the numerous medical specialists; and that only includes providers who are in-network and therapies/procedures which are covered.
On August 1, 2013, Gage is scheduled for open-heart surgery to repair his VSD along with an additional procedure to repair damage to another area of his heart caused by the VSD. Since this will require at least 3-5 days in the hospital, we will need help with money for food, fuel, parking and accommodations. Also, because of this surgery, we will reach the $6500 out-of-pocket this year. If Gage’s recovery is longer than 10 days, Corey will begin to have to use unpaid FMLA time which will create an even greater financial stress on our already over-burdened family.
Because of Gage and Cole’s multiple disabilities, inability to communicate many of their basic needs clearly to strangers, amount of time and energy required caring for them and traveling to and from appointments, Shannon cannot work. Even though we are a single-income family, Corey makes just enough that we just miss qualifying for most programs that provide financial assistance. While our families and close friends have been very generous, we still struggle to come up with the money to pay medical bills and all the expenses related to getting back and forth. We need help!
Cole and Gage are the most precious boys a person could know-we love them with all of our heart and soul and would not change a thing about them. Raising two children with special needs is rewarding, but takes its toll. We could also really use money to be able to obtain respite services in order to have a break occasionally to try to enjoy each other as a couple and keep our marriage strong to provide a happy, stable home for our sons.
The money raised will be used to assist the family with:
-Medical Bills
-Transportation costs ( examples: fuel, parking, maintenance)
-Respite services to give mom and dad much needed breaks
-Costs associated with hospital stays ( examples: food, drink, accommodation expenses if necessary)
--Alternative therapies and/or therapeutic equipment not covered by insurance ( Examples: hippotherapy, music therapy, weighted flatware,)
Please donate now- anything will be a tremendous help to our boys and our family!! Thank you for thinking of us and even if you cannot donate, thoughts and prayers are appreciated as well!! Thank you!
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