My name is Vlad and I suffer from epilepsy since 1986, when I was involved in a boating accident, which resulted in a trauma to the left frontal cranial lobe.
The epilepsy is drug resistant and so far there has not been found a proper combination of drugs to stop the seizures, but only enough to reduce their number, which still is about 6-8/24 hours.
An accurate and complete diagnosys can only be made in one of two
ways: a functional MRI, which would be the easiest but
it cannot
be performed because I also have a Vagus Nerve Stimulator implant (see
video: VNS Implant). Sadly all it can do is reduce the number of
seizures from 12-15/day to 6-8/day, if at all.
As the epilepsy is drug resistant, over the years I've used the following drugs, with no notable effect:
- Sodium Valproate (Depakine Chrono) 1000mg,
- Levetiracetam (Keppra) 1500mg,
- Lamotriginum (Plexxo) 200mg,
- Clobazam (Frisium) 20mg
- Lyrica (Pregabalin) 1800mg,
- Phenobarbital 50mg,
- Carbamazepine 1500mg,
- Diazepam 1200mg,
- Trileptal (Oxcarbazepine) 900mg,
- Rivotril (Clonazepanum) 500 mg.
Currently I use 4 different drugs:
- Sodium Valproate (Depakine Chrono) 1000mg,
- Levetiracetam (Keppra) 1500mg,
- Lamotriginum (Plexxo) 200mg,
- Clobazam (Frisium) 20mg,
- and the VNS implant.
This combination of treatments along with a specific diet keep the seisures between 6-8/24 hour cycle.
With that in mind, I finally made the decision to undergo a surgery to remove the focal point of origin. The procedure involves two separated interventions:
- a deep scan with intracranian electrodes so I can precisely locate the focal point of origin.
- after that, the epilepsy surgery will remove it. Both interventions can be done with a budget of about 15,000 EUR
