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Terry Burgess hasn't added a story.
Khyra turned 12 this year:)
KHYRA was born with COMPLEX MEDICAL NEEDS. See bearcare.ca to see a very detailed and RAW story regarding this young lady and her family.
For many years we've had people trying to get me to institutionalize KHYRA, as they felt that what our family was going through was unrealistic. The truth is, she would have no where to go. Because she is unique, and has always been a "grey area" ===we have to fight for every bit of support we get.
https://www.youtube.com/watch?v=0HT80cj0gCE
For us though, she fits perfectly in our family. We LAUGH together, we LIVE and we LOVE, and we snuggle when we struggle, WE ALWAYS stick together because that what FAMILY does. It is very exhausting to be a caregiver 24/7. Our health supports for children with complexe medical needs are lacking in meeting a quality of life for families. For 11 years we did this without asking for community support. Khyra's father left two years ago, and I've had to do what was a challenge for two people...I have a wonderful partner who has stepped in and does what he can, and for that I'm grateful.However his health has not been top notch. The health of my family members has taken a hit, and when you are a caregiver, you do what comes naturally- your caregive. I'm tired, I'm trying to correct financial stress in our personal life as we have been trying to sustain a two income lifestyle with one income. The funds I'm raising is to support Khyras medical care needs, thus providing me some time for self care, to work in the summer , to attend my own medical appointments, and to allow for some extra care while I try to list my home and build an addition on a small 600 ft cottage that would reduce my monthly expenses. It has recently come to my attention that the market has placed our home value way below what we owe on the mortgage. I feel like I have a solution, and then it falls to pieces. Any funds we collect will help us to make this work for Khyra. It's quite a challenge to move with a child with complex medical needs, let alone to keep up with all her needs on one income. I've never saught out help until the past year. WE need help please:) I am a woman of pride, but I feel I need my community right now. I will pay it forward down the road, for now I'm humbly asking for your help.
HOW TO HELP?
It can be in forms of donations to help cover health care needs for Khyra, if you have a job opening -salary FT with health benefits, my partner is looking and ready to commit- carpenter, if you want to volunteer to help with the addition to small cottage for Khyra, or just help in some way...I'm open to any community supports right now. If you want to help with fundraising, I just can't keep up, and I want to spend TIME with my daughter and not spend all my time and energy fundraising and working. I work full time with youth at risk, I contribute to society and work hard. I just need to keep this together.....I believe things will get better, and my website is to try and give something back....bearcare.ca
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