This is to try to get HELP for TWO of my KIDS I have a 6YR disabled little boy named JUAN who has a number of problems. A 7yr old little girl name DALIA has problems with asthma and lungs He was born preemie and was 61/2 weeks early, on August 30th 2005.He weighed 5 pounds, 3 ounces and was purple. He didn't breathe or cry, and was connected to all sorts of medical equipment in the nursery. We were in the hospital for a couple of weeks. When we were released, I noticed my baby was losing weight. He was always crying, and could never calm down. He threw up a lot, so instead of breast milk, I tried to give him different formulas. Things got worse, and he began to drop weight like crazy I was devastated and didn't know what to do. His doctor wasn't helping me, and I felt like I was just waiting for my son to die. When he was six months old, we began to notice delays. He couldn't hold his head up, and wouldn't do anything except cry. He started to see early child intervention and then from there, a lot of referrals were set up for different studies at Doernbechers Children's Hospital. He was diagnosed with 1. SUBTLE DIFFUSE HYPER INTENSE T2 SIGNAL INVOLVING THE LEFT MEDIAL TEMPORAL AND PARASYLVIAN REGIONS OF THE BRAIN 2. HEART MURMUR 3. EPILEPSY 4. DYSPHAGIA WITH CHRONIC REFLUX ASPIRATION 5 .GERD 6. CEREBRAL PALSY 7. GAIT ABNORMALITY 8. SHOULDER DYSTOCIA AND HYPOXIA 9. FAILURE TO THRIVE At this point in time, they have put a feeding tube down his nose to see if it would help. He is also on a list of medications and microlipids to help him gain weight. Juanito has constantly been in the hospital with aspiration pneumonia. He has had so many surgeries and different things done to help him. To this day, he continues with surgery after surgery. They have placed a feeding tube in his belly to feed him, and he has a nissanfundoplacatious. He has a surgery scheduled for March 27th, because of problems with vomiting. His nissen has blown, and the acid is destroying his insides . During the surgery, they also have to do some other things to help with his esophagus. My little boy has three to five seizures a week. They have changed his meds so many times. At this point it is very stressful and sometimes I don't know what to do, and it breaks my heart see my son like this. One thing I can say is, I'm glad my son walks and when he's feeling well, he acts like a normal kid. He is pretty delayed in school because he has missed a lot of class time. He only goes a few hours a day because of all of his medical issues, but he is slowly making progress. He is one strong trooper who no matter what is wrong with him he always has a smile. As for my family this is very hard on us. My husband and I have four kids. Two weeks ago, my oldest daughter suffered a severe asthma attack and didn't get proper attention. When I took her to the emergency room, they discharged her, knowing that she couldn't breathe on her own. She ended up in the hospital with one collapsed lung, and the other one clogged. The doctor said she wouldn't make it that everything looked help less. After all this, her body has been left weak, and her lung scarred. She's going to need to see a lung specialist and it is hard to say that we have ohp and it is so hard to get the proper care i have to go upon my self and fight for her and pay for doc and treatment in order for my daughter to feel better and be her normal self again. My daughter has always been healthy in tell back in 2009 when she got sick with H1NI VIRUS and ever since has had asthma. The saddest thing is that medical insurance does not want to cover certain treatment and meds. It is hard when she is having problems breathing and doc's don't want to try something new to see if it will help all they say is keeping giving her albuteral and flovent were we, here in our town there are not the greatest doctors to cure kids. All of these out of pocket expenses have been hard for my family. It's difficult living off one income, and having to travel back and forth to Portland, and having to pay bills and pay for gas and food for the family while traveling and lodging at times. When we travel I always take all my kids and we go as family. I also have twins that are 3 yrs old and it so hard for them to be going and sitting through app ts and app ts, sitting through 3 to 5 hr long surgery. PLEASE HELP SUPPORT THIS FAMILY GET THROUGH ALL OF THESE APP TS AND AFFORD TO PAY FOR MEDICAL EXPENSES FOR THERE SON AND NOW THERE DAUGHTERS SPECIALIST AND GET THE PROPER TREATMENT AND MEDS. THANK YOU AND GOD BLESS WE ARE IN PROCESS OF MAKING A BLOG FOR THERE FAMILY AND SOMEONE WILL BE WRITING ON WALL TO KEEP EVERYONE UPDATED THIS FAMILY NOW HAS A BLOG Our Story http://my2angelsinneedofhelp.blogspot.com/2012/03/our-story.html http://www.gofundme.com/My2AngelsinneedofHELP