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Smiles for Shyanne
$1,045 raised
21% of $5k goal
11 contributors
108 Weeks running
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Shyanne and her family are in desperate need of assistance. In January of 2015 Shyanne will require multiple surgeries and her family will be inundated with expenses as they travel with their beautiful daughter to Calgary for treatment. More ...

Shyanne and her family are in desperate need of assistance. In January of 2015 Shyanne will require multiple surgeries and her family will be inundated with expenses as they travel with their beautiful daughter to Calgary for treatment.

When Shyanne was born she had a discolouration similar to a port wine stain on her lip. By age four her lip doubled in size and her baby teeth were gone. It became evident something was wrong. The family travelled to Harvard Boston Clinic where specialists diagnosed Shyanne with AVM saying this was the worst type of the four different kinds of the problem.

Shyanne’s mother Amber says, “Less than 1% of the world population get it, it is like a monster is living inside her face, when they remove the mass if they miss ¼ of a cell it will come back with a vengeance. The management is not a solution, when she is fully grown it will be necessary to remove the jaws, cheeks and nose and do a total reconstruction, and there are no guarantees”.

“I never shed a tear in my life until I saw what’s happening to my daughter, if a tooth were to come through her lip we could lose my little girl” Shyanne’s father Terry says emotionally. He adds if “this happens pressure has to be placed on the lip so that it doesn’t bleed through”.

A letter from Dr. Frankie O. G, Fraulin of the Alberta Children’s Hospital states: “Shyanne is a 6 year old girl followed through the Vascular Birthmark clinic at the Alberta Children’s hospital. She has a type of birthmark that is called an arteriovenous malformation. This is an abnormal collection of arteries and veins that is causing an enlargement of her upper lip and can bleed easily if traumatized. Shyanne has some pain in the area and has had some episodes of bleeding but they have been controlled with direct pressure. She will require treatment of this malformation by a team of interventional radiologists and plastic surgeons. The blood flow to the malformation will be blocked (embolization) and 24-48 hours later the malformation will be resected. This could be a lengthy procedure and has specific risks. A date has not yet been set for the operation. One of the risks is that it may not be possible to completely remove the malformation.”

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