Help end Vlad's 28 years of struggle with epilepsy
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6% of €15k goal
22 contributors
2 Years running
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My name is Vlad and I suffer from epilepsy since 1986, when I was involved in a boating accident, which resulted in a trauma to the left frontal cranial lobe. The epilepsy is drug resistant and so far there has not been found a proper ... More ...

My name is Vlad and I suffer from epilepsy since 1986, when I was involved in a boating accident, which resulted in a trauma to the left frontal cranial lobe.

The epilepsy is drug resistant and so far there has not been found a proper combination of drugs to stop the seizures, but only enough to reduce their number, which still is about 6-8/24 hours.

An accurate and complete diagnosys can only be made in one of two ways: a functional MRI, which would be the easiest but
it cannot be performed because I also have a Vagus Nerve Stimulator implant (see video: VNS Implant). Sadly all it can do is reduce the number of seizures from 12-15/day to 6-8/day, if at all.

As the epilepsy is drug resistant, over the years I've used the following drugs, with no notable effect:

  • Sodium Valproate (Depakine Chrono) 1000mg,
  • Levetiracetam (Keppra) 1500mg,
  • Lamotriginum (Plexxo) 200mg,
  • Clobazam (Frisium) 20mg
  • Lyrica (Pregabalin) 1800mg,
  • Phenobarbital 50mg,
  • Carbamazepine 1500mg,
  • Diazepam 1200mg,
  • Trileptal (Oxcarbazepine) 900mg,
  • Rivotril (Clonazepanum) 500 mg.

Currently I use 4 different drugs:

  • Sodium Valproate (Depakine Chrono) 1000mg,
  • Levetiracetam (Keppra) 1500mg,
  • Lamotriginum (Plexxo) 200mg,
  • Clobazam (Frisium) 20mg,
  • and the VNS implant.

This combination of treatments along with a specific diet keep the seisures between 6-8/24 hour cycle.

With that in mind, I finally made the decision to undergo a surgery to remove the focal point of origin. The procedure involves two separated interventions:

  1. a deep scan with intracranian electrodes so I can precisely locate the focal point of origin.
  2. after that, the epilepsy surgery will remove it. Both interventions can be done with a budget of about 15,000 EUR
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Perks

€5
A Tanda of your choice
  • 0 claimed
Any Tanda, Tango, Milonga or Vals of your choice, with me or Petruta :)
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€10
Two Tanda of your choice
  • 0 claimed
Any two Tandas of Tango, Milonga or Vals with me or Petruta :)
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€20
Free EBRU painting
  • 0 claimed
Free EBRU water painting
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€20
Free Tango lessons
  • 4 claimed
Four free Argentinian Tango lessons with Vlad and Petruta at "Barrio de Tango". Details on locations here: www.barriodetango.ro
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