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Help Riley Get A Swing
$5 raised
1% of $1k goal
1 contributor
0 days left
Ended Apr 29, 2014
While I was pregnant with Riley I found out he has hydrocephalus. At that time the doctors wanted me to terminate my pregnancy. They said he'd stillborn or just live a few minutes after birth. Than after he was born breathing on his own they ...

While I was pregnant with Riley I found out he has hydrocephalus. At that time the doctors wanted me to terminate my pregnancy. They said he'd stillborn or just live a few minutes after birth. Than after he was born breathing on his own they said he'd only live a few hours, days, and wouldn't make it a week. Well weeks went by and Riley was like any other baby!!! Than sadly his head started enlarg...ing. Took him to the doctors here in East TN they told me that my sons life wasn't worth saving, because he wouldn't live long and if he did he'd be stupid and a veggie (their very words to the T). I found a doctor in Nashville TN that was willing to save my sweet boy. In February 2007 Dr. Tulipan took one look at Riley and had him set up for surgery the very next day!! Ry had a VP Shunt put in to drain all the fluid off his head. We could see right away the shunt was working right by how much Riley's head had went down. After letting his head fill with so much fluid it caused nerve damage. Riley was no longer able to do things that he was able to do before. Months went by and Riley was well himself, than around 10 months old he started having seizures real bad. Didn't take long to find a doctor and get Ry on meds. The meds started working and he no longer had any more seizures!! From the years of 2007-2008 Ry started getting pneumonia way to much. He had a swallowing test done and it showed that everything he was eating and drinking was going into his lungs. In June 2009 Ry had a fundo done and a feeding tube put in that was a big blessing. 2009-2012 Riley's health was up and down, in and out of the hospital. During those years he also had a few other surgeries on his hips and legs. In September 2012 I thought my sweet boy was getting his angel wings. His body shut down and he was comatosed. After spending weeks in PICU, I was told his liver stopped working right. That caused one of his meds to build up on his liver and also made his kidneys not work right. After tests and different meds he started coming to, but had very high blood pressure. Finally got in to come down and not to long after that Riley got to come home. This year has been a great year for Riley he started the 1st grade which he's home bond, but he gets to go to his home school and visit. Another thing with Riley since his feeding tube surgery is that it's been hard for him to put weight on and keep it on. Riley is currently 36.2 pounds and going up!!! They said Riley would never know anyone or anything oh boy they were super wrong. My baby has many different personalities he lets me know when he needs or wants something, and loves to smile. He showed the world that he was a lot stronger than anyone expected him to. He's my little superman and a Hero in my eyes.

Riley enjoys the outside so much and loves to swing but a handicap swing cost way to much for us so we are reaching out for help. Anything helps and we are going to do anything to get him a swing so he can enjoy outside more. Thank everyone for the love and support. Riley also has a facebook page its called Rileys Journey. Heres a link www.facebook.com/rileysjourney1120

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