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My Name is Kaiya Gabrielle Mack. I was born with a very rare birth defect called Gastroschisis (1 in 10,000 babies get this). My parents knew about this from my ultrasound and had to move to California temporarily to prepare for my birth and numerous operations. I came a month prematurely, after which I had more complications. 1 in 20 babies born with Gastroschisis form and Atresia in my case, my intestines ruptured and I had to remove 9 cms of my intestines as well as disconnect both ends with staples. Thus the last month and a half of my life I have not been able to eat or drink any form of food. I have been fed intravenously via TPN and Lipids made from Soy. This causes Liver damage and thus the Doctors have been balancing between not giving me enough nutrients to decrease Liver Damage as well by not getting enough I am currently in the lower 3 percentile in weight for Babies.
My Mother's work insurance only wants to cover 80% of my bills and this does not even include the moving costs, Housing, Transportation, Flights back and forth as well the time off from work my parents have to do in order for me to get the medical care I need.
If you can help me in any form it would be a Blessings to me and my Family.
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