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Hi my name is Antonio, I have a 3 year old daughter named Riley Faith. She was born with congenital heart defects. We are getting ready to bring her in for a second heart surgery shortly after her 4th birthday on March 1st 2016. Before we go we would love to get to take her to Disney World so she can have a magical experience before she has to go in for her procedure. We unfortunately can not afford the trip and need some help with the cost. It would mean the world to our family if we could get to do this before we have to go through another heart surgery, and the recovery process. Riley loves frozen and all things Disney and has asked us about everyday for the last 3 months if we could go before she has to go to the Dr again. So again if you could help it would mean the world to us.
So Riley's condition started before birth. When developing her heart
did
not develop the wall that it is supposed to have. Her aorta
grew over
her pulmonary artery. When Riley was 6 months old she
had a procedure
which we had her pulmonary artery disconnected
from her heart and sewed
over. Her heart no longer pumps blood
into her lungs. The heart now
pumps blood to the body and the
veins in her head and upper arms bring
it directly to the lungs
to be oxygenated The second procedure she is
having done will
connect her veins from the lower extremities to the
lungs and be
disconnected from her heart. Riley loves Princess Ariel
and Queen
Elsa, and of course Mickey and Minnie Mouse. She told Cindi
who
is my wife and I that if we get to go the first thing that she
wants
to do is to go and sit with Ariel and have her tell her
stories about
the ocean. We want nothing more than to grant Riley
this wish before we
have to go to CHOP and relive a very scary
time in all of our lives.
Again if you can help my family will be
forever thankful for your
generosity. Thank you.
Riley's next surgery is slated shortly after her fourth birthday. We do not have a solid date, as her condition can change at any time. She may not even get to be able to wait until her fourth birthday for her second and final surgery. Her prognosis is good for after the surgery. She will have some difficulty as she gets older, and needs to exert more energy. Her heart will not be as strong as a normal heart, and she will have take easier on herself. In talking with doctors during her birth and first round of surgery. They told me that the first round of patients who had this procdure done are now turing around 30 years old and seem to be doing fine, but do need to see a cardiologist on a regular basis for the rest of their lives.
we are trying to make this happen in july or august. Our son who is turing 5 in september is going to be starting kindergarten and we do not want to have to take him out of school for a trip. So we are hoping ot have this done and booked by june.
So we are trying to raise around 5000 dollars. that will pay for the airline tickets, hotel, park tickets, and all of our meals when in Florida. There is no need for a rental car as disney provided us a shuttle to and from the airport which will drop us off right at our hotel of choice and will even take care of our bags and helping us check in so we can get right to the park and start Riley's magical pre surgery trip.
Riley loves Frozen, and all the disney princesses. She has told us many times that she wants to go and see cinderella's caste first and get a princess makeover at the bibbity bobbity bootique before we start going on the rides. Then she wants to go meet princesses, and the whole mickey mouse gang. She is excited to go on the teacups, and cinderella's carousel. I cant begin to thank anyone that can help with this. it would mean the world to us
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