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Seren was diagnosed at 17days old with Cystic Fibrosis It's a life limiting disease that affects mainly the lungs and breathing and the digestive system. It's a genetic condition caused by a fault in the gene called CFTR. The gene usually regulates the amount of chloride and sodium in cells but because the gene is defective it causes sticky thick mucus to build up in the airways and tubes the blockages damage the lungs and other organs. Treatment requires intense daily Physio (up to 30 mins a day), endless medication including antibiotics to fight infection, nebulisers, hospital stays for ivs and a high fat diet to try control weight. Eventually most people with CF require lungs transplants to improve life for a little longer. Each week 5 babies are born with CF and 2 people die, there is no known cure for cystic fibrosis.
We are aiming to raise enough funds to be a ble to buy Seren a Airway Clearance vest to enhance and essentailly enable her to live a longer healthier life.
The Vest Airway Clearance System is an easy-to-use medical device for children and adults. The Vest System is quiet, comfortable and portable. Its features promote user independence and simplify treatment routines.
The Vest System uses a technology called High Frequency Chest Wall Oscillation (HFCWO). The Vest® System has an inflatable garment connected by Air Hoses to an Air Pulse Generator. During therapy, the inflatable garment inflates and deflates rapidly, applying gentle pressure to the chest wall. This works to loosen and thin mucus and to move it toward the larger airways, where it can be cleared by coughing or suctioning.
To purchase a new Physio vest will cost aroung £15,000 so we sourced the internet and have found secong hand vests that are roughly between £3,000 and £5,000. We are going to organise a charity event, with local talent from the manchester area's, sponsored activities and such. We are looking for any donations or assistance, volunteers to help with this appeal. Seren Is such a happy baby and is always laughing, we just want her to have the best possible start on life and this vest is ESSENTIAL to her....Please help <3
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