Milan and Denan: two brothers, one rare disease.
$270 raised
14% of $2k goal
4 contributors
0 days left
Ended Dec 15, 2013
Imagine having a child with a genetic disorder so rare that even most doctors and scientist have never heard of it. Imagine going through hoops to find the best care for your child, when nobody really knows what the best care is. Imagine being ...

Imagine having a child with a genetic disorder so rare that even most doctors and scientist have never heard of it.

Imagine going through hoops to find the best care for your child, when nobody really knows what the best care is.

Imagine being worried about your child every minute of the day.

Imagine having to wait for almost eleven years to learn the proper diagnosis. 

Imagine knowing that what you just found out about your oldest child, also applies to your youngest...

Imagine the more you learn about this rare genetic disorder, the more grim the future of two of your three children looks.

Imagine getting a spark of hope through research and studies, but having to travel to a different country to participate in a NIH research while paying airfare out of your own pocket.

Imagine trying to live a normal life with three children and a business to run, while two of your children have this rare disease and need a lot of care.

Imagine that you know that there are people on this world that can make a difference.

 Imagine the relief that, thanks to these people, this family can come to the US and learn more about Alström Syndrome and what the future might bring. 

Imagine how it would feel to you if you would be able to help make that difference.

Click –Donate now- and you no longer have to imagine: you just made it a bit more real.

Please help this Dutch family come to the US to participate in an NIH study to learn more about Alström Syndrome, this rare genetic disorder that affects two of their three children.

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