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Learn more about our family and support our fundraising efforts at http://www.teammarissa.com
Marissa is diagnosed with Pervasive Developmental Disorder, Anxiety and OCD. She also a rare genetic disorder called Kallman Syndrome, which we believe caused Marissa’s short stature and no sense of smell (maybe she will have a career with Dirty Jobs). Don’t be too alarmed by these conditions, Marissa is not a victim! Marissa’s goal is to study Marine Biology in college, we just need to get her there. She is fond of Entymology and all the wonders of the outdoors.
Marissa has been in the public school system for the last 11 years. We are running out of time to help provide the appropriate educational services. Rosemary, her mother, has been an outspoken and persistent advocate. We have always worked with the school system, trying to better Marissa's educational experience. The school system can not, or maybe will not, provide the appropriate services for Marissa to be successful.
Marissa is extremely smart and is able to do things with her hands that we could only dream to accomplish. She is a fountain of knowledge with anything science related. However, she is only able (currently) to write at about a second grade level!
In January 2013, we petitioned the school to place Marissa in a non-public educational setting. We think they refused; however, to date we have not received a clear response. We believe we upset the system by asking for something they're not willing to provide.
To highlight our struggle, we sent a request for Marissa's records and the school system sent an invoice for more than $30,000.00!
Let us be clear, the school system can still do the right thing and provide Marissa with a Free Appropriate Public Education, in the Least Restrictive Environment, by granting our request for non-public placement. However, they are choosing not to do this and we have no choice left but to hire experts to champion our fight!
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