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Como muchos saben nuestro primo/tío/amigo Jorge está viviendo con Alzheimer desde hace unos años. Cada día que pasa se hace más difícil esta realidad para Cheryl y Jorge, y no queremos dejarlos solos. Por esto los invitamos a participar en esta campaña para ayudarles y acompañarlos en el día a día de esta complicada enfermedad. Unámonos todos y ayudemos a nuestra familia y amigos.
As some of you know our dear friend/uncle/cousin Jorge has been living with Alzheimer's for some years. With each passing day, coping with this disease has become more and more difficult for Cheryl and Jorge. We don’t want to leave them alone. So we invite you to support this campaign to accompany them as much as we can. Let us all unite and help our family and friends.
(Para donar desde Colombia se debe registrar la tarjeta de crédito a través de Paypal, seleccionando el país de origen al iniciar)
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Things are changing
Posted by CherylCuellar on January 9, 2015 Leave a Comment
Today Jorge picked up his napkin, tore it into pieces and stirred it into his soup. And then ate it. I don’t know what to do with this information. Is this something we should correct, or just let it go to maintain peace and harmony? I don’t know how to protect him anymore…I simply can’t anticipate the kinds of things that are beginning to happen, and I have no plan on how to deal with them.
Jorge is totally unaware that he has Alzheimer’s, he just thinks I’m a mean person who’s always fussing at him, and he’s right. He can’t do most simple things (taking the garbage out has resulted in several major disasters), and yet he furiously resists any guidance. He fed the dogs a full packet of the Raspberry Vitamin C powder I’ve been taking for my cold. When I tried to calmly explain that it’s not for dogs, he slammed the dish down and stalked out of the room. He can’t either hear or comprehend when I try to speak to him in a reasonable tone of voice. So I find myself speaking loudly, slowly, sharply almost all the time now. And I don’t like this person I’ve become. If he was a kid, I would reason with him or discipline him…but there’s just no way to deal appropriately with this 6’2″ guy who’s perfectly healthy and physically capable, but acts like a small child.
I thought I would be able to cope better…I didn’t want to be angry, frustrated, mean or guilty. But things are changing, and not just for Jorge. Throughout the six years we’ve been at this, I’m aware of a fundamental shift in my identity: I’m no longer a wife/friend/lover, I’m now a nanny/nurse/caregiver.
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